Tag Archives: Swansea

Designing a better future for children with brain conditions with help from South Wales Freemasons

L - R: Marc Lewis (Assistant Provincial Grand Master), Robert Payne (Charity Officer), Terry Osborn (Head of Income Generation at Cerebra) and Ross Head (Innovation Centre Designer and Developer)
L – R: Marc Lewis (Assistant Provincial Grand Master), Robert Payne (Charity Officer), Terry Osborn (Head of Income Generation at Cerebra) and Ross Head (Innovation Centre Designer and Developer)

Our Innovation Centre and the work they do to help children take part in and enjoy life alongside their friends has been given a boost, thanks to a generous donation of £38,749 by South Wales Freemasons.

One of the many ways we support children with brain conditions and their families is through our (CIC). At the CIC, a small team of innovators design and build bespoke products to help children overcome the challenges they inevitably face when taking part in activities that non-disabled children may take for granted.

The generous grant will contribute significantly to the salary costs for the Centre’s talented design team for one year, ensuring that the Centre can continue to make a difference to the lives of children across south Wales, and beyond.

Representatives from the South Wales Province visited the Cerebra Innovation Centre on Monday 28th January 2019 to learn more about the Centre’s innovative work and some of the children who will directly benefit from their support.

One of the children they met was two year old Amelie from Swansea who has quadriplegic cerebral palsy. Before Christmas the team made a Bouncer for Amelie which has made a huge difference to her daily life.  The Bouncer allows Amelie to move independently, something that she would otherwise be unable to do. She loves the swinging sensation and can enjoy this while the seating gives her all the postural support she needs. Mum Lucy explained that Amelie loves her Bouncer as it allows her to move on her own and have fun. The Bouncer also strengthens Amelie’s legs and core muscles so it’s great exercise for her too.

Amelie
Amelie

Ten year old Bailey is also from Swansea and has been enjoying the Spinning Pod that the Innovation Centre designed and made for him. Bailey has a life threatening brain condition, is blind and autistic. Bailey has a great love of music and really enjoys bouncing and spinning – so the new chair is perfect for him. In the chair Bailey feels safe and cocooned and can spin it himself which is great for his independence and also for him to self-soothe when he feels frustrated. His mum Charlie explained that that the chair is his new safe place and he spends a lot of time in it playing the piano and with his toys. She added that it’s ‘Bailey proof’ – very sturdy and unbreakable!

Staff and pupils from Ysgol Crug Las, a special needs school in Swansea taking pupils from ages 3 – 19, also attended the event.  Head teacher Clare Hobson explained that the school has a close and long standing relationship with the Innovation Centre.

Terry Osborn, Cerebra’s Head of Income Generation, said “We’re very grateful to South Wales Freemasons for their generous grant, which will allow us to help hundreds of young people with cerebral palsy, autism and similar conditions to enjoy everyday life in the same way as everyone else.”

Rob Payne from South Wales Freemasons, said:

“I’m delighted we’re able to support Cerebra, who do outstanding work helping some of the most vulnerable people in our community to have access to the same opportunities and lifestyle as the rest of us.”

You can find out more about the Cerebra Innovation Centre and view their whole product portfolio here.

CIC is a partnership project with the University of Wales Trinity Saint David and is based within its Swansea College of Art.

Running, cycling and donuts!

Ross Head sneaking a donut

Ross Head sneaking a donut

The Cerebra Innovation Team are officially 5 weeks away from competing in the Swansea Triathlon 2018, with Captain Imogen to lead the team.

Their intense training regime, consists of the three P’s: purpose, progress and protein. It’s all about the green machine smoothies, intense hours of cardio and… donuts? But at least the team are getting some cardio in!

They are training hard to make sure they keep up with Captain Imogen, who, although she’s only 6 is keeping her team on their toes.

The shark of the team is Dan Cuthbertson, who will swim Imogen to victory. Dan is a seasoned surfer who won’t be defeated by anything in the water.

Gerallt getting a bit lost

Gerallt getting a bit lost

The team’s resident biker, Gerallt Devonald, is training hard to smash the cycle course, map in hand, water bottle at the ready, Gerallt will be towing Captain Imogen to triumph – if he can find his way!

Then there’s Dr Ross Head and, even though he’s eating quite a lot of donuts, he is training hard to pick up the running segment of the triathlon. Ross is smashing the evening runs and even includes a lunch time run to channel his inner Mo Farah for the day.

Captain Imogen

Captain Imogen

We would also like to say, a huge welcome and thank you to our new team mate Carol Evans, who is joining us from our wonderful charity partnership with Specsavers this year. Carol competed in two triathlons last year and the triathlon bug bit!

If you’d like to support the team you can make a donation by texting CICT18 and the amount you would like to give to 70070, or by visiting the team’s Just Giving page. All the funds raised will help our innovation center to keep coming up with bright ideas for brilliant kids. 

We are coming for you Swansea Tri!

Poppy to Take on Second Triathlon Challenge

Rob and Poppy

Rob and Poppy

Last year, eleven year old Poppy Jones realised her dream of competing in the Cardiff Triathlon. This was particularly challenging for Poppy as she has chronic lung disease and quadriplegic Cerebral Palsy. This means she can’t sit, stand, roll or support herself and life is a daily challenge for her, but having a life-limiting condition doesn’t stop her having fun.

Poppy’s Dad Rob helped make her dream come true by pushing/pulling her around the course using custom made equipment specially designed by our Innovation Centre (CIC).

The father and daughter team will be once again rising to the challenge, taking part in the Swansea Triathlon on 28th May.

Rob’s motivation for doing this is simply to help his daughter: “taking part in this triathlon is so exciting for her and psychologically it will really benefit her. She gets so frustrated at the limits her condition puts on her and this will really focus her mind on what she can do. Poppy doesn’t think ‘I can’t’ but rather ‘with a little help I can’. I’ve got my work cut out though as Poppy doesn’t want to just take part – she wants to win!”

The team at team at the Innovation Centre, who designed the equipment that allowed Poppy to take part in the Triathlon last year,  took this opportunity to re-design some of the equipment to allow Poppy to compete on an even larger scale.

“Last year, we designed a chair and boat in Poppy’s favourite colour – yellow,” says Dr Ross Head from the CIC.

“For this year’s challenge, we’ve modified both products to make them more efficient; to make them faster – and to change the look to match Poppy’s new favourite colour, orange!

“Poppy’s also grown a lot since last year’s triathlon and the boat we built last year was too small. So I redesigned the boat to be bigger, however this meant it would be heavier, so I started from scratch using everything I had learnt about hydrodynamics to ensure the boat would be fast, efficient and create the minimum resistance so that Rob could swim the course. This year’s boat uses a V-shaped tri- hull. This allows speed through the water but is given stability by the two smaller outrigger hulls.

“Poppy’s Triathlon Chair has also been upgraded to make it faster and more comfortable. The guys at V-Trak very kindly donated some high quality wheels to help them roll to the finish line. It has upgraded bespoke components which will ensure efficiency, a speedy transition from cycling to running and ensure Poppy’s safety.“

The CIC team recently tested the boat out on the water (see below for photos).

You can sponsor Rob and Poppy through their Just Giving page.

 

 

CIC is back up and running!

CIC full 2 main

As you may be aware we have moved offices – in fact, we moved building, workshop, office and all of our kit. It took forever! We had enjoyed a top floor office in University of Wales TSD Swansea for the last 9 years, with a panoramic sea view and lots of space. But in line with the plans to re-house the School of Industrial Design in a newly renovated building in the city centre, we upped sticks and joined them.

Our new home is in part of the Old Swansea Central Library which has been renovated and sports a fantastic new glass atrium on the west elevation. You may have seen the building in one Dr Who episode where they filmed in the round reading room. The building looks fantastic now, and we have brand new state of the art machines in the workshops and a lovely new office (no sea view unfortunately).

CIC full main

That said, it took a while to move in! As with all building projects there were many unforeseen obstacles which led to delays. We packed up our things into boxes and crates, according to the schedule, in June but we were not able to move in until August in the end and the workshop was not commissioned until early November! So after a few homeless months and with no workshop we did get delayed in some of our work, and we have been fighting hard to pull back some of our deadlines. Thank you all so much for being patient with us!

The good news is that our phone works again!! Yes- you heard it, 3 months off thegrid, but we are connected again! Please call us on 01792 483688 if you have any requests for products or help that we might be able to offer.

We have many new products getting close to finishing; including fish tank enclosures to make fish tanks accessible to children, “Oxygem” our oxygen cylinder trolleys and the 20 writing slopes are close to completion- we had to order the parts from China to get these finished!