Tag Archives: CIC

Running, cycling and donuts!

Ross Head sneaking a donut

Ross Head sneaking a donut

The Cerebra Innovation Team are officially 5 weeks away from competing in the Swansea Triathlon 2018, with Captain Imogen to lead the team.

Their intense training regime, consists of the three P’s: purpose, progress and protein. It’s all about the green machine smoothies, intense hours of cardio and… donuts? But at least the team are getting some cardio in!

They are training hard to make sure they keep up with Captain Imogen, who, although she’s only 6 is keeping her team on their toes.

The shark of the team is Dan Cuthbertson, who will swim Imogen to victory. Dan is a seasoned surfer who won’t be defeated by anything in the water.

Gerallt getting a bit lost

Gerallt getting a bit lost

The team’s resident biker, Gerallt Devonald, is training hard to smash the cycle course, map in hand, water bottle at the ready, Gerallt will be towing Captain Imogen to triumph – if he can find his way!

Then there’s Dr Ross Head and, even though he’s eating quite a lot of donuts, he is training hard to pick up the running segment of the triathlon. Ross is smashing the evening runs and even includes a lunch time run to channel his inner Mo Farah for the day.

Captain Imogen

Captain Imogen

We would also like to say, a huge welcome and thank you to our new team mate Carol Evans, who is joining us from our wonderful charity partnership with Specsavers this year. Carol competed in two triathlons last year and the triathlon bug bit!

If you’d like to support the team you can make a donation by texting CICT18 and the amount you would like to give to 70070, or by visiting the team’s Just Giving page. All the funds raised will help our innovation center to keep coming up with bright ideas for brilliant kids. 

We are coming for you Swansea Tri!

Captain Imogen and her brave triathlon crew!

Captain Imogen

Captain Imogen

The Cerebra Innovation Centre design team will be embarking on a triathlon adventure this year with their very own triathlon pilot, Imogen Ashwell-Lewis, in charge! Their first target is the Swansea triathlon on 20th May.

The team met Imogen a few years ago when they designed and made a beautiful tiny wheelchair that allowed her to move around her home and play with her brothers and her toys. The additional independence it gave her was amazing, as was the friendship they developed with Imogen and her family.

Now 6 years old and having been turned away from many sports due to her cerebral palsy,  Imogen leapt at the chance to pilot the CIC crew.

While the Innovation Centre team have learned lots about triathlons through designing and making the equipment for Poppy a couple of years ago, they’ve never actually competed in one! So this will be a chance for them to put their own equipment to use.

The bright idea came from Ross Head: “When we thought about finding a triathlete/pilot for this year, I just mentioned that maybe we should start a team and the guys agreed – which I had not expected! That was the day Team Cerebra was born!

“Dan is a strong swimmer and surfer so it made sense that he would swim and tow Captain Imogen in the boat. Gerallt loves cycling and is keen to tow Imogen to victory. Of all the sports I do, running is not one of them. So I’ve taken one for the team and am learning to run, training on the streets where I live until I am fit enough to venture further afield”.

The Innovation Centre Team

The Innovation Centre Team

“I am super excited to dust off my speedo’s and swim with Imogen and the team. But I need to get practicing as my swimming skills have been replaced with a belly. To the pool I go! We’re really looking forward to it, and I think we stand a good chance at winning!” (Designer Dan)

We’re looking forward to following them on their journey to glory and hope that Imogen knows what she’s letting herself in for!

If you would like to show your support to the team, you can donate by texting CICT18 and the amount you would like to donate to 70070 e.g. CICT18 £5 to 70070, or by visiting their Just Giving page.

Imogen’s Story

Imogen with mum Catherine

Imogen with mum Catherine

We are extremely excited to have been named Specsavers’ charity of the year for Wales this year. As part of this, we are looking at the stories of some of the families that we have helped in Wales.

Imogen Ashwell-Lewis, from Caldicot, was diagnosed with Cerebral Palsy at birth. The condition severely limits movement in the six-year-old’s lower body. As Imogen turned two, her mum, Catherine, sought additional support to ensure her daughter had the best opportunity to develop, both physically and socially.

She came across the Cerebra Innovation Centre in Swansea, which creates bespoke products for children with neurological conditions, and immediately got in touch.

‘The team at the Innovation Centre were great,’ she says. ‘We discussed Imogen’s condition and her need for something that could help her movement. They were very accommodating and immediately started working on an adapted wheelchair to help her get around our home and, as she grew up, out in the garden and further afield.’

As Imogen got older, she returned to the Innovation Centre to have a larger wheelchair created. The team at Cerebra have also designed a bespoke seat, which Catherine can now easily fit to trolleys when she is shopping or in her car, so Imogen remains comfortable while away from their home.

‘Imogen has a really close relationship with the design team, who often invite us along so she can test new products they are developing,’ Catherine says. ‘It’s great to see a group of people committed to improving the lives of children like Imogen.

‘The fact that a name as recognised as Specsavers has pledged its support not only means additional vital funds for the charity and the Innovation Centre, but also much needed awareness about what they can do.

‘Day-to-day life would have been so much more difficult without the adaptations Cerebra designed for us. Before she had the wheelchair her movement was extremely limited, which in turn affected her cognitive development and ability to speak and play with other children. This couldn’t be further from the truth now – she’s a smart and social six-year-old who has been given the opportunity to do everything a child her age should be able to do.

‘If it wasn’t for Cerebra this would have never happened.’

You can find out more about our Specsavers partnership here.

Cerebra Innovation Centre’s Rocket Shelf Finds a New Home

Eve and her rocket shelf

Eve and her rocket shelf

The Cerebra Innovation Centre recently designed these rocket shelves. This cool piece of equipment was originally designed for a young boy, to help his mum who has to transport numerous medical machines whilst transferring him from room to room.

They were styled to suit a child’s bedroom and be more like a child’s toy rather than looking dull and medical. They feature 3 shelves, space to store an oxygen bottle, a 4 socket extension lead so all the machines are plugged in and you only need one wall socket, and 4 omnidirectional wheels so it can be moved around effortlessly. Additionally, there is ample space to wind wires and store bits and bobs.

Since the team at the Innovation Centre first started making the shelves, there have been many happy children and parents that have benefited from the design, including Eve. She and Dad Steven are currently testing out the rocket shelves and sent us these gorgeous pictures.

The rocket shelf

The rocket shelf

Steven said: “It’s amazing THANK you so much I will send more pictures as we go on amazing.”

Heidi and Tim also had a rocket shelf for their little one Charlotte, and we were so pleased when Heidi sent us in this lovely feedback.

Heidi says “The shelving unit is working out great for us and easily stores all her machinery and medical items, fitting well into the bedroom space.

The fact it is on wheels is great as we have to change her ventilators weekly which means needing easy access to the back of the machines which the wheels and open backing provides for”

Thank you to everyone for the wonderful feedback on our rocket shelves.

 

If our Innovation Centre can help you and your family just get in touch on [email protected].

We Launch #FamilyFriday!

The Cerebra Innovation Centre has helped lots of families with their designs over the years.

From items which have everyday applications such as the Oxy-gem and the GoTo Seat, to their larger projects such as the Surfboard and Triathlon equipment which have helped children like Poppy achieve their dreams.

We want to celebrate all of our fabulous families with our new social media campaign – #FamilyFriday! Every Friday we’re going to dedicate our newsfeeds across our Facebook, Twitter and Instagram to all our families – whether you’ve been helped by the CIC or not.

We need your help! Share your positive pictures on any of our social media channels using the hashtags #FamilyFriday #CIC #CerebraInnovationCentre and we will post as many as as we can!

As well as celebrating the positivity of our community, we also want to highlight the great work that the team at the Innovation Centre does. Also they are always looking for new challenges so if you have an idea for a piece of equipment that would benefit your child, or have a problem that you think they may be able to come up with a solution for, please get in touch at [email protected].

Richard Mylan presents BBC Radio 4 Appeal

Our BBC Radio 4 Appeal, presented by actor Richard Mylan, was broadcast on 27th and 31st August. If you missed it you can still listen to it below:

Please note that you are no longer able to make a donation through the BBC but if you would like to support our Appeal you can give now either online or by calling us on 01267 244221. Thank you.

 

Bright Ideas for Brilliant Kids

Playing with friends, days out with your family, exploring the world around you. It’s all a normal part of growing up. But for children with brain conditions these things which seem so simple and natural can be difficult, even impossible. Sometimes children need specialist equipment to help them join in with life.

At Cerebra we believe that any challenge can be overcome. We provide specialist equipment to make life easier and more enjoyable for children with brain conditions, giving them the same opportunities other children have to live an ordinary life. Just take a look at some of the great work that our Innovation Centre does. 

Independence for Charlie

Charlie on his trike

Charlie on his trike

Charlie, whose story you can hear in the Appeal, is a great example of how we help children discover life and enjoy themselves. Charlie’s trike gives him the chance to be independent and have fun with his family and friends. He’s at the heart of the action and his days are filled with adventure. Since receiving his new trike Charlie hasn’t looked back!

 

 

 

 

 

 

Richard Mylan – our Radio 4 Appeal Presenter

Richard Mylan about to record the BBC Radio 4 Appeal at Broadcasting House

Richard Mylan at BBC Broadcasting House

Richard has appeared in many popular series and is best known for playing deputy head teacher Simon Lowsley in the BBC1 series Waterloo Road. Richard and his son Jaco were also the stars of an intimate documentary which aired on BBC One Wales – Richard and Jaco: Life With Autism. When Jaco was diagnosed as autistic, Richard was thrown into personal turmoil. He had to re-think his hopes and dreams for his son when he was just four years old. Now Jaco is 11, Richard’s biggest concern is what the future holds for him.

You can listen to why Richard is supporting us by clicking the link below.

 

Thank you for your support. Together we can help families of children with brain injuries discover a better life together.

 

Watch Charlie enjoying his trike:

 

Holly’s Rocking Dinosaur!

Holly and her rocking dinosaur

Holly and her rocking dinosaur

Liz and Jim are parents to 15 month old Holly and they recently contacted the Cerebra Innovation Centre (CIC) with a challenge to complete in time for their daughter’s first birthday. They told us their story:

“We contacted the Cerebra Innovation Centre (CIC) after realising the first birthday present we had bought for our daughter, when she was just a month old, was completely inappropriate. Holly loves rocking and we really wanted to get her a rocking animal for her first birthday and we found a dinosaur. The problem was that it was unlikely Holly would ever be able to use it as it had no harness or support.

Holly has a rare chromosome disorder. She has duplications on 2q24.2 and 2q24.3. This manifests as Holly having hypotonia, global developmental delay, visual impairment, Sandifer Syndrome and food allergies. She is at a high risk of developing autism and epilepsy but we are lucky that she seems to be ok at the moment. As Holly has hypotonia her core is very weak and so she struggles to sit unsupported.

Holly is a really happy, wonderful little person and we wanted her to be able to enjoy her rocking dinosaur. We approached Ross and the team at the CIC to see if it would be possible to convert her toy so she can enjoy it safely, as it is one of the few toys she has that is just for her to have fun and enjoy being a little girl. They rose to the challenge beautifully and added pieces to it so that we could attach the Firefly GoTo seat, which would keep her safe.

Holly loves her dinosaur, she can make it rock by herself and she is independent.  We are so grateful to Cerebra for making this possible for Holly. It even arrived back in time for her first birthday!”

If you have an idea for a piece of equipment that you would like the CIC team to build, you can get in touch with them at [email protected] or 01792 483688.

 

The Earl of Wessex to officially open UWTSD’s ALEX Building

The ALEX Building

The ALEX Building

Cerebra and the University of Wales Trinity Saint David will welcome The Earl of Wessex to the University’s Swansea College of Art and Design ALEX Building on Thursday, September 29, to officially open the Building.

The Earl of Wessex will be greeted and welcomed by Professor Medwin Hughes, DL, UWTSD Vice-Chancellor, before embarking on a tour of the building, where he will meet staff and students.

His Royal Highness will also visit The Cerebra Innovation Centre (CIC), which was established in 2004 as a partnership between the University and Cerebra, a charity working with brain injured children. From its base in ALEX, the centre designs and manufactures individual products to assist children living with serious life-limiting conditions. Profits from commercialised products are fed back into CIC’s R&D activities.

The visit will conclude with the unveiling of a plaque by The Earl of Wessex to officially open the ALEX Building.

Dr Ian Walsh, Dean of UWTSD’s Swansea College of Art and Design said: “The visit by The Earl of Wessex to the ALEX Building marks the end of a journey which started in 2006. Over the last 10-years this magnificent historic building has been transformed. Its original vision as a beacon of excellence has been restored and once again it occupies centre stage as a seat of creative learning in the heart of Swansea.”

Chris Jones, CEO of Cerebra, said: “The Cerebra Innovation Centre (CIC) based within the ALEX building is an initiative created from Cerebra’s partnership with the University.  We created the centre in order to provide high quality, innovative product solutions to help the families of children with a variety of brain conditions. Cerebra is a national charity for brain injured children and the CIC forms an extremely important part of our work.  Innovative product solutions are all about discovery. There is a certain magic in that and Cerebra is all about joining with families in order to take that journey of discovery. We listen to families, face up to their challenges, believe that for every challenge there is a solution and then discover that solution together. The Cerebra Innovation Centre epitomises that philosophy. It truly is a great innovation in itself.”

CIC full mainThe ALEX Building plays host to a number of important centres of excellence. It provides state-of-the-art accommodation for Wales’ oldest Art Foundation Programme. UWTSD is the only University in Wales still running its own in-house art foundation which remains a key point of entry to Swansea College of Art.

Swansea Bay has the largest cluster of independent architectural glass practitioners in Europe. The Architectural Glass department at UWTSD, which celebrates its 80th anniversary in 2016/17, is unique in the UK and has a truly international reputation. Supporting the creative industries is fundamental to Swansea College of Art’s mission. Within the ALEX Building this is seen clearly in the work of the innovative 3D Computer Animation and Creative Computer Games programmes.

The ALEX building is also home to the University’s Industrial Design department, which include the only Automotive and Transport Design programmes in Wales plus the award winning Product Design programmes.

Becca’s fab rocket design!

Becca

Becca Davies recently joined our Innovation Centre team for a month long internship. Becca wanted to gain some design experience before going on to study 3D design at the University of Northumbria in Newcastle.

We gave Becca the task of developing our medical device holder. Using recently received family feedback, she went on to create this fun but functional rocket shelving unit to hold all manner of medical equipment at the bedside.

Becca told us:

Rocket Shelves

“My time with CIC has been invaluable! The guys that work here and the families they help day in and day out have been a massive inspiration to me. Not only have they been an endless source of knowledge and talent to learn from – boosting my skills and competency as a designer. But they have also taught me about the great things that can be achieved through product design – happiness, excitement and making what people with disabilities once thought was unreachable, reachable.

I worked closely with Anna, mother of Osian to realise the design and form of my Rocket Medical Stand. She needed it to organise Osian’s everyday things so I designed it to be accessible and open, easing the interaction between herself and the equipment. Alongside this I wanted the stand to bring a little extra joy to their everyday lives hence the out-of-this-world rocket form!”

Good job Becca – and good luck with your studies!

If the Innovation Team can help you with any design issues, just get in touch here.

Cerebra Innovation Centre Open Afternoon

On 15th June we held an open afternoon at the Cerebra Innovation Centre (CIC) to showcase some of the amazing designs produced by our talented team.

Disabled children often encounter barriers to taking part in activities that non-disabled children take for granted. Our Innovation Centre designers are inspired by the children we work with to come up with brilliant ideas, that aren’t currently available, to help children have fun, play, discover and take part.

The Cerebra Innovation Centre is based at the ALEX Design Exchange in the heart of Swansea, part of the University of Wales Trinity St David School of Art campus. The Open Afternoon at CIC was an opportunity to talk to guests about the Innovation Centre’s work as well as give a tour of the first class facilities that are available to the team as part of this collaborative project between Cerebra and the University of Wales Trinity St David (UWTSD).

Guests were welcomed by James Moxey, Director of CIRIC (Creative Industries Research and Innovation Centre, UWTSD) and given an overview of Cerebra’s work by Chris Jones, Chief Executive of Cerebra. Rob Jones, who will shortly be competing in the Cardiff Triathlon with his daughter Poppy, spoke movingly about the difference CIC has made to Poppy’s life by enabling her to take part in this challenge (read more below).

Dr Ross Head, Product Design Manager at CIC, spoke passionately about the positive difference CIC makes to the lives of children with brain conditions and explained, “I have had the opportunity to make a difference to fellow human beings simply by doing what I love to do. As a product designer, it is my passion to solve problems by the creation of a physical products, and to do that for such a worthy cause really does give me fulfilment in my work.  As CIC work within UWTSD, we are immersed in a creative culture which drives the team to design beautiful yet functional products that help children and supply them with products that promote their individuality rather than highlight their differences”.

Guests also had the opportunity to take a tour of the Innovation Centre’s office, workshop and machine room which illustrated the journey from design stage to fully working bespoke products.

Some of the Innovation Centre’s recent designs include:

Poppy's triathlon boat

Poppy’s triathlon boat

‘Poppy’s Dream’ which has been a huge challenge for the team who have designed and made the equipment needed to take Rob and Poppy to the finish line of the Cardiff Triathlon on 26th June. Eleven year old Poppy has cerebral palsy and is determined not to just take part, but to win!

 

 

Kai taking to the waves

Kai riding thewaves

The ‘tandem surf board’ with its supportive bucket seat that allows disabled children to surf whilst being controlled by a trained surf instructor, and the ‘Surf Access Vehicle’ which enables wheelchair bound children to get to the water’s edge.

 

 

Fitting the helmet

A bespoke riding helmet for 16 year old Tommy Lee so that he could fulfil one of his dreams to go horse riding with his friends. Tommy Lee’s unique head shape meant that a standard riding helmet would not fit.

 

 

Designs by the team have also been developed and made commercially available through retailers. After being contacted by a parent who needed help to get out and about in the snow with a wheelchair, the team designed a sledge with a supportive seat and harness built in. The sledge proved so popular that CIC collaborated with Gordon Ellis & Co to launch their very first commercially available product.

The GoTo is a postural support seat developed by Firefly and Cerebra that lets children participate in those moments that make family life special. Families worldwide use their GoTo Seats in supermarket trolleys, on planes, swings and Granny’s dining chairs. They make daily tasks easier, and mean kids don’t need to miss out. It gives a little piece of independence that lets them see the world from a new perspective and feel they’re at the heart of the action.

All of the Innovation Centre’s designs are in response to direct requests from parents and carers who are struggling to find the piece of equipment that would make their child’s life easy more, more inclusive and more fun. All of the designs are made free of charge for families. So if you would like to challenge the team to find a solution for your family please get in touch with them at [email protected].