Tag Archives: Cerebra Innovation Centre

Making dreams come true this #GivingTuesday

#Giving Tuesday is on November 27th and this year we’re celebrating the amazing work our Innovation Centre do to help children achieve their dreams, however big or small. Children like Imogen, who we helped to achieve her dream of making it to the top of south Wales’ highest peak. You can help us make even more children’s dreams a reality. A gift from you, whether large or small, will make a positive difference to a young person’s life. You can either text WISH07 £5 to 70070 to donate £5, or use the form at the bottom of this page to donate online. Thank you.

Six year old Imogen was born with cerebral palsy and needs a wheelchair to get about. She often can’t take part in activities that her friends take for granted. She wasn’t even allowed to take part in her school sports day. Like most children her age Imogen is lively and adventurous and her inability to get involved makes her feel frustrated, sad and lonely.

At Cerebra, we don’t believe there is any challenge that can’t be overcome. When our friends at Specsavers arranged a sponsored walk to the top of Pen-y-Fan, we thought ‘let’s see if we can take Imogen with us’.

Help us work wonders for children this #GivingTuesday

Our Innovation centre adapted a special four-wheeled mountain bike and, with support from a team of volunteers, Imogen showed grit, determination and stamina to make it to the top. The smile on her face says it all.

With your help we can make more children's dream become a reality

With your help we can make more children’s dream become a reality

Imogen’s mum, Catherine told us: “Imogen is thrilled and excited to have had this adventure. She’s never been able to do anything like this before because of her cerebral palsy. There have been so many times that she hasn’t been able to join in with physical activities which leaves her feeling left out. Being given the opportunity to do things a child her age should be able to do is a real boost to her confidence and self-esteem. she really is over the moon.

If they can dream big, they can do big - never accept it's not possible!

If they can dream big, they can do big – never accept it’s not possible!

Imogen’s next dream? To become a Paralympian. Watch this space!

#GivingTuesday is on 27th November and you can follow our conversation on our social media – we will be using the hashtags #GivingTuesday and #Cerebra. We would also love to hear if you will be taking part in any fundraising – be sure to tag us! Please help us to make even more children’s dreams come true this #GivingTuesday.
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Photos by Dimitris Leakis/ Athena Pictures

CIC come up with clever 3D printed solution

The Cerebra Innovation Centre (CIC) were recently asked for help with a small project, which really emphasises the usefulness of 3D printing and the computer age when trying to solve tricky little problems.

Going back only 6 or 7 years, this problem would have required meeting face to face, taking measurements, a day or two in the workshop and returning to fit the product; now with a photo and a few clicks of a mouse, CIC were able to produce a product in record time!

Bryher Hill, an occupational therapist in South Wales emailed CIC to ask for help. A cheeky young lad on her case load kept switching his wheelchair’s dual controls off so that he could override his helper.

Bryher explains: “I have always been aware of the CIC but haven’t needed to ask for their help until now!  I attended a wheelchair assessment for a young child that we work with and we found that he would try to turn the wheelchair power off whilst his carer was driving the wheelchair as it had dual controls.  I was concerned that if he were to do this in the middle of a road crossing or similar, it would be dangerous, so decided to ask CIC if they could design a cover for the control unit.  I took a couple of photos and some quick measurements at the wheelchair handover and sent them over to CIC.  They did the rest; for free! Ross’ skill and communication have been fantastic, and I am in awe of 3D printers and what they can do.  Thanks for your help.”

Bryher cleverly took some photos of the control unit- plan, side and quarter views, and drew a quick sketch of the unit including the outline dimensions. This was enough for the CIC designers to set to work. Using their high tech computer aided design (CAD) software called Solidworks, they generated a model of a part which could cover the control unit sufficiently that our cheeky young client could not switch it back on, but which was quick and easy to pop on and remove without causing any damage.

As if this was not high tech enough, with a few clicks of a mouse, the model was sent to another software package to prepare it for 3D printing, which in turn was wirelessly sent to the Ultimaker 3D Printer. 3D printers are able to make plastic parts and components by melting a thin filament of plastic which is fed into the machine, and a print head deposits the plastic in place according the model file that is uploaded. This machine was very kindly donated to CIC by Mr and Mrs Coventry who run Claire’s Project. The printer has seen hundreds of hours of use and has made some amazing parts which have helped children across the UK live their lives with a little more comfort -and fun!

If you have an idea that you think the team at the Innovation Centre would be able to help with, please get in touch! You can email them on [email protected] or give them a call on 01792 242688.

 

Here’s the journey from start to finish:

Eleven year old Alex rides the waves on a surfboard designed by our Innovation Centre

Alex having a great time surfing at The Wave Project

The team at the Cerebra Innovation Centre are dedicated to designing and making bespoke products that enrich a child’s life, giving them new experiences that wouldn’t otherwise be possible.

Created in partnership with Roger Cooper, our surfboard was designed for children with limited mobility and brain conditions. It allows wheelchair-bound adrenaline junkies to get out of their chairs and onto the water. The tandem design includes a supportive seat for the child and plenty of space on the back for an experienced surfer to steer it in the right direction. They have been a great success providing endless hours of fun to thrill-seeking children who could not otherwise experience the benefits and thrill of catching waves.

The latest to try one of the boards was 11 year old Alex who has quadriplegic athetoid cerebral palsy. Alex is from Eastleigh in Hampshire and was on holiday with her family in south Wales when she took part in a session organised by The Wave Project.

Following Alex’s session her mum Charlene told us: “Thank you so much.  Alex absolutely loved it and even asked if we could move to South Wales so she could surf more often. The photos of the day are amazing and, to be honest, brought a little tear to her eye. To watch her take part in something we thought she would never be able to access is just incredible and we really cannot thank you all enough.”

The Wave Project brings people together through surfing. Their evidence-based surf therapy programme is proven to help young people feel less anxious and more positive. They also run beach school projects to help children feel more engaged in education. Working with partner organisations and some amazing volunteers they are changing lives together.

Holly Sayce, South Wales Coordinator at The Wave Project said: “The boards have been essential to us as a charity in making our service fully inclusive of all abilities and disabilities. Used alongside our beach wheelchairs we can offer young people with mobility issues the chance to participate in our surf therapy courses or one-off private sessions.

The board most recently given to our Cymru project by Cerebra was used during our summer sessions and even on a chilly day at Aberavon beach just last week. We are looking forward to our next surf therapy year starting in Spring 2019 to see even more young people use the board and take part in our sessions.

Kindly stored by one of our partner surf schools, we are able to take the board to both of our delivery locations at Aberavon and Porthcawl. We now have three amazing Cerebra boards across our UK projects allowing young people in many locations to access surf therapy and experience the many benefits.

We are super grateful to Cerebra for this amazing piece of kit and for their determination and enthusiasm around improving accessibility for children and young people.”

Families where a child has a brain condition face challenges every day. Just to learn, play, make friends, enjoy and experience the world can feel difficult, even impossible.  At Cerebra we believe that every challenge can be overcome.

Our Innovation Centre is a partnership project with the University of Wales Trinity St David.

Innovation Centre’s spinning pod a big hit with Curtis

Curtis and his spinning pod

Curtis and his spinning pod

Louise recently contacted our Innovation Centre after seeing a post on our Facebook page about the spinning pod chairs that the team had created. She knew one would be perfect for her son, 11 year old Curtis who has Charge Syndrome. She told us their story.

Curtis has Charge Syndrome which affects him in lots of different ways. It affects his development, meaning that he can’t walk and talk and he also has many sensory issues. He is partially sighted and has a cochlea implant because he is partially deaf. He is unable to tell where his body is in space and because of this, he has balance issues.

Longer term, Curtis has heart and lung problems and is on long term ventilation after needing a tracheotomy. He has night carers who have been a big help as Curtis isn’t a good sleeper, although he goes through patterns with his sleep and it has been helped with medication.

Curtis craves constant sensory input which means that he often gets frustrated and can lash out. His 4 year old brother Oscar is great with Curtis but it can be difficult for him, especially if Curtis is having a bad day.

Oscar enjoyed the box

Oscar enjoyed the box

For a while now, I have been looking for something to help Curtis to feel more grounded. We had a very old spinning chair that Curtis would spin on all day if he could because he doesn’t get dizzy but as he was getting older, the chair was getting less safe for him to use and I was worried it would break. Then I saw pictures of the spinning pod chair that the Cerebra Innovation Centre had created on Facebook and knew it would be perfect for Curtis!

I contacted the team and the day the chair arrived, Curtis was absolutely over the moon with it! Oscar even loved the box that it came in! The pod now makes up an important part of Curtis’ day. He can touch the floor and spin himself which gives him some independence and it also grounds him so the benefits have been huge.

The Innovation Centre have been great. A lot of things are designed for younger children and often there’s not a lot available for older children but they helped to fill in the gaps. There are so many challenges we face and it’s nice to know there’s someone there to help.

You can find out more information about the Cerebra Innovation Centre on our website. If you would like to find out how you can get a spinning pod like Curtis’s, contact the team at [email protected].

Team Imogen smash the Swansea triathlon

Swansea tri group

The whole team

The 2018 UWTSD Swansea Triathlon has come and gone for another year, but for Team Imogen this has been an incredible start to our adventures in 2018!

Six-year-old Imogen Ashwell-Lewis, who has cerebral palsy, captained the charity team with a difference. She was supported around the course by a team consisting of the three designers from our Innovation Centre which is based in Swansea.

The day got off to an incredible start with our resident swimmer, Dan Cuthbertson taking the lead on the swim. This led on to the bike ride where Gerallt Devonald towed Imogen in style. Lastly Dr Ross Head smashed the last leg of the course and ran with Imogen to the finish. The race ended with the whole team joining Ross and Imogen to cross the finish line – full of smiles!

Imogeen in the boat

Imogeen in the boat

Dr Ross Head said, “ I am so happy to be able to say that we completed the Swansea Triathlon as team Imogen! I could not be more proud of the team and our Captain Imogen. She was an absolute star. She was so happy and waved and said hello to everyone all the way round! It is great to have been able to showcase the work we do in front of so many people. The organisers, the spectators and the other athletes were so supportive. I would really like to thank them all; they made a special day. Look out for us in future events- we are hooked and will be back.”

We would like to thank the filming crew from RS Components who followed our story, the incredible friends and family who supported us throughout the course, the organisers who put on such an incredible event and of course, Cerebra’s little super star Imogen who was amazing all day.

This is the start of our Triathlon Journey 2018 – Up next, the Superhero Series 2018!

You can show your support for team Imogen and their efforts through their Just Giving page. If you would like to find out more about the Superhero Series, get in touch with the team at [email protected]. We’re also looking for families to join us as part of the Superhero Series so please get in touch!

Tom’s writing slope makes him the envy of his classmates

Our Innovation Centre team recently helped a young boy with his writing skills – and made him the envy of his classmates.

Tom’s mum Claire recently approached the Cerebra Innovation Centre after seeing a post about one of their products, the Doodle on our Facebook page.

She had been looking for some time for a writing slope which would suit the needs of her son, nine year-old Tom who as well as being diagnosed with sensory processing disorder and Autism, also has hypermobility in his arms.

This meant that when Tom was learning to write, he was curling himself around the desk. At first, it was thought that this was because he is left handed and was finding it difficult to get the correct position to be able to write with his left hand.

One of Tom’s occupational therapists suggested getting him a writing slope to help with his posture while he was writing, but the first one that they tried slid while Tom was trying to use it.

Then Claire saw a post on our Facebook page about the Doodle, a writing slope designed by the team at our Innovation Centre.

The Doodle was developed for any child who may need a writing slope to aid their writing, drawing, posture and hand control. We have used magnets and a gas strut for quick removal and changing of the ingenious paper and book holding rulers, whilst including a set of pens stored in an inventive swivelling holder to aid children with reduced motor skills. We believe these innovative features make it the best and most beautiful writing slope available anywhere.

With a few adjustments to the design to make it suitable for the left handed Tom, it was ready and they haven’t looked back!

Tom has been taking his new writing slope in to school and it has made him the envy of his class mates! Claire said:

I think his face says it all in these pictures! He took it school today and his whole class were super impressed with it. I have never seen boys so excited by a hydraulic lid! Usually he hates going to school, but he was excited to show off the Doodle today!

Can the Cerebra Innovation Centre help you? We’d love to hear from you.

Imogen’s Story

Imogen with mum Catherine

Imogen with mum Catherine

We are extremely excited to have been named Specsavers’ charity of the year for Wales this year. As part of this, we are looking at the stories of some of the families that we have helped in Wales.

Imogen Ashwell-Lewis, from Caldicot, was diagnosed with Cerebral Palsy at birth. The condition severely limits movement in the six-year-old’s lower body. As Imogen turned two, her mum, Catherine, sought additional support to ensure her daughter had the best opportunity to develop, both physically and socially.

She came across the Cerebra Innovation Centre in Swansea, which creates bespoke products for children with neurological conditions, and immediately got in touch.

‘The team at the Innovation Centre were great,’ she says. ‘We discussed Imogen’s condition and her need for something that could help her movement. They were very accommodating and immediately started working on an adapted wheelchair to help her get around our home and, as she grew up, out in the garden and further afield.’

As Imogen got older, she returned to the Innovation Centre to have a larger wheelchair created. The team at Cerebra have also designed a bespoke seat, which Catherine can now easily fit to trolleys when she is shopping or in her car, so Imogen remains comfortable while away from their home.

‘Imogen has a really close relationship with the design team, who often invite us along so she can test new products they are developing,’ Catherine says. ‘It’s great to see a group of people committed to improving the lives of children like Imogen.

‘The fact that a name as recognised as Specsavers has pledged its support not only means additional vital funds for the charity and the Innovation Centre, but also much needed awareness about what they can do.

‘Day-to-day life would have been so much more difficult without the adaptations Cerebra designed for us. Before she had the wheelchair her movement was extremely limited, which in turn affected her cognitive development and ability to speak and play with other children. This couldn’t be further from the truth now – she’s a smart and social six-year-old who has been given the opportunity to do everything a child her age should be able to do.

‘If it wasn’t for Cerebra this would have never happened.’

You can find out more about our Specsavers partnership here.

Cerebra Innovation Centre’s Rocket Shelf Finds a New Home

Eve and her rocket shelf

Eve and her rocket shelf

The Cerebra Innovation Centre recently designed these rocket shelves. This cool piece of equipment was originally designed for a young boy, to help his mum who has to transport numerous medical machines whilst transferring him from room to room.

They were styled to suit a child’s bedroom and be more like a child’s toy rather than looking dull and medical. They feature 3 shelves, space to store an oxygen bottle, a 4 socket extension lead so all the machines are plugged in and you only need one wall socket, and 4 omnidirectional wheels so it can be moved around effortlessly. Additionally, there is ample space to wind wires and store bits and bobs.

Since the team at the Innovation Centre first started making the shelves, there have been many happy children and parents that have benefited from the design, including Eve. She and Dad Steven are currently testing out the rocket shelves and sent us these gorgeous pictures.

The rocket shelf

The rocket shelf

Steven said: “It’s amazing THANK you so much I will send more pictures as we go on amazing.”

Heidi and Tim also had a rocket shelf for their little one Charlotte, and we were so pleased when Heidi sent us in this lovely feedback.

Heidi says “The shelving unit is working out great for us and easily stores all her machinery and medical items, fitting well into the bedroom space.

The fact it is on wheels is great as we have to change her ventilators weekly which means needing easy access to the back of the machines which the wheels and open backing provides for”

Thank you to everyone for the wonderful feedback on our rocket shelves.

 

If our Innovation Centre can help you and your family just get in touch on [email protected].

We Launch #FamilyFriday!

The Cerebra Innovation Centre has helped lots of families with their designs over the years.

From items which have everyday applications such as the Oxy-gem and the GoTo Seat, to their larger projects such as the Surfboard and Triathlon equipment which have helped children like Poppy achieve their dreams.

We want to celebrate all of our fabulous families with our new social media campaign – #FamilyFriday! Every Friday we’re going to dedicate our newsfeeds across our Facebook, Twitter and Instagram to all our families – whether you’ve been helped by the CIC or not.

We need your help! Share your positive pictures on any of our social media channels using the hashtags #FamilyFriday #CIC #CerebraInnovationCentre and we will post as many as as we can!

As well as celebrating the positivity of our community, we also want to highlight the great work that the team at the Innovation Centre does. Also they are always looking for new challenges so if you have an idea for a piece of equipment that would benefit your child, or have a problem that you think they may be able to come up with a solution for, please get in touch at [email protected].