Samuel’s mum Joceline recently contacted our Innovation Centre. As a member of a parent group on Facebook, she had seen how another child had benefited from our Oxy-gem. She knew that it would be perfect to help Samuel.
Three year-old Samuel has Down’s Syndrome and small airways disease. This means that he is on oxygen 24/7 and whilst he can walk, he could not carry the weight of his oxygen cylinder so his mobility was extremely restricted.
Joceline knew that the Oxy-gem could greatly improve Samuel’s independence and the Innovation Centre team were happy to help!
We sent Samuel one of our Oxy-gems in time for him to take it for a test drive around Blenheim Palace!
Joceline told us: ‘It was the first time he’d been able to participate on foot, rather than in his buggy. You can see the excitement on his face. The trolley went for a good 20 mins, on the path, on the grass, through the leaves….it was a life liberating day for him. He also uses it at school twice a week and it’s brilliant.
Thank you so much for your help with this. I cannot begin to tell you how valuable the Oxygem is to us. It has freed our son from the shackles of a buggy and helped him develop his independence and core strength and physical stamina.’
If you would like to find out how the Cerebra Innovation can help you, whether that’s with the Oxy-gem or if you have another challenge for the team, please get in touch! Email [email protected].
This year we have been chosen to benefit from the Co-op Local Community Fund.
At a time when funds for charitable organisations are becoming more difficult to access, we are incredibly grateful for this opportunity to make real difference.
We are raising funds so that we can continue our work to help
families who have a child with a brain condition to discover a better life
together. Families who
have a child with a brain condition such as autism, cerebral palsy or Down’s
Syndrome face challenges every day. Just to learn, play, make friends, enjoy
and experience the world can feel difficult, even impossible. But we don’t
believe there’s any challenge that can’t be overcome.
Support from the Co-op Community Fund will help us to carry on supporting families like the Hoopers from Kidwelly. For seven-year-old Ryan Hooper and his family, getting a good night’s sleep was a constant struggle until they discovered Cerebra.
Ryan has Down’s syndrome and the
condition often causes poor or disturbed sleep, something that affected him and
had a knock-on effect on the whole family. When his mum, Vanessa, heard a
representative from Cerebra speak four years ago at a local Down’s syndrome
support group, she was keen to find out more about how the charity could help
her son. Helping him to get a better night’s sleep was at the top of her
Vanessa says “Cerebra’s sleep service
was invaluable to us. Whenever I called they’d answer my questions and reassure
me I could cope. The sleep practitioners helped us countless times and were
able to get us into a routine, which gave some normality to our daily life”.
To help raise the vital funds, we’ll be relying on Co-op
shoppers. Every time they buy Co-op own brand products they get a 5% reward for
themselves, and a further 1% goes to local causes like ours. Co-op members can
decide which local group they would like to back by going on-line at www.coop.co.uk/membership. We really
hope that people will visit the website and choose to support us.
If you’re not a member and would like to support us, you can
join at your local store or online at www.coop.co.uk.
When a community comes together we’re able to achieve great things, so we hope you can help promote our project.
Watch Vanessa explain what it’s like to have a child with a brain condition who doesn’t sleep well:
Hello, I’m Lowri and I’m really happy to be joining Cerebra
to work on an exciting and new Welsh Government funded project, as part of a
Knowledge Transfer Partnership between us and Cardiff University. Before
joining the team, I worked for the National Centre for Mental Health (NCMH). The
NCMH is a team based at Cardiff University, and they research the causes of
mental health conditions in adults and children. Speaking with parents of
children taking part in the study, it was clear that families often feel the
level of support is lacking after they receive a diagnosis. This project aims
to address this important issue.
We will be working with the Cardiff University Division of
Psychological Medicine and Clinical Neurosciences in order to improve the
helpfulness of information and the services which families and children living
with rare genetic disorders struggle to access. We will be focusing on
improving mental health related information available to families.
Rare genetic disorders are caused by changes in a person’s
DNA (their chromosomes). These changes vary in size. That means they can either
affect a very small part of someone’s DNA, or the changes can be bigger and
affect a larger area. Some rare changes to our DNA can lead to serious impacts
on our physical health, brain development and affect our mental health too.
These disorders are rare because individually, they are not
seen very frequently in the general population. However, if we looked at the
whole population altogether, 1 in 17 people in the UK will be affected by at
least one of these conditions, that’s 3.5 million people! One of the most
common disorders is called 22q11 Deletion Syndrome (also known as DiGeorge
Syndrome), with 1 in 2000 new born children being diagnosed. Another, much
rarer syndrome is called Kleefstra syndrome, and occurs in less than 300 in the
UK. Cardiff University are currently
researching these conditions in order to answer the question often asked by
parents: “What does this diagnosis mean
for my child, and where can I get help and advice?”
Research has shown that people diagnosed with these rare genetic
disorders often experience difficulties with their mental health, yet families have
trouble finding helpful information and struggle to access mental health and
other services for their child. We believe it’s important that everyone can
access useful, high quality information about mental health conditions, based
on the very best evidence from research.
We aim to work with medical services, other charities, as
well as families with lived experiences to get a well-rounded idea of what services
currently offer that is really helpful, what is unhelpful, and what people think
could be improved. We will also ask what they think about the availability and
quality of information about developmental and mental health conditions in
children and young people. We hope that doing this will lead to important
changes in services in order to equip people with key information and empower
families and children to make informed choices that are best for them.
Myself and the rest of the team involved feel very
passionate and committed to this project, and hope that it will make positive
changes for families in the future.
Emma tells us about the period of transition that her son, 17 year-old Joshua is about to face and the services that are available to help the transition.
I have always feared Joshua becoming older as it felt like a
step into the unknown. Every birthday sounded so much older than the year just
gone, the jump from 9 to 10 years old for instance seemed enormous, but of
course it wasn’t at all, it is just a number. Now the jump from 17 to 18 ,
where we are approaching now, that is a
significant change. In the eyes of the law, Joshua will become an adult next
March, when he turns 18. I cannot keep my head buried in the sand about this
one, this change is approaching rapidly and so I need to face it head on.
“I don’t need to think about that yet surely!”
Even as young as 15/16, health and education professionals referred to ‘Transition’ and I tried hard to ignore them and joke that I did not know what would happen next week, never mind that far ahead. But the references to transition did not go away, they gathered pace and they cropped up when we saw his neurologist who would be handing him onto an adult neurologist, our children’s epilepsy nurse who has taken care of his seizures since he was 4 years old would be passing him on and in his Education Health Care Plan meetings, when they would ask what we wanted Joshua to do when he left school at 19? I wanted to shout out loud “Stop it, he’s only 16… I don’t need to think about that yet surely!!” We had finally got to a comfortable place – he was in the best school for him, we had found respite provision that suited us all and we had established doctors who knew and understood him – and now, because of an anniversary, everyone wanted to throw all that we had carefully built up into a big bag and shake it up. I resisted it with all my might.
Then something changed this May and I began to relax and embrace the change, to see it as an opportunity rather than a threat. This change was due largely to one person: a social worker who was allocated to us from ‘Futures Plus’, who would represent Joshua once he was an adult. She paid us several visits, getting to know both us as his parents and Joshua in his home, school and respite session. She always delivered what she promised to do and most importantly, she listened, giving us the time to explain how we felt or how things are, she even saw my husband and I separately, which nobody has done before, to explore our very different perspectives.
Respite for young people
In my mind I had envisaged adult daycare and respite
services as being grim places, where my 18 year old son might be mixing with
80+ year old dementia sufferers, with the staff trying to juggle their very
different needs. Our social worker immediately explained that there were facilities
specifically for young people and so I
relaxed and decided that Joshua might actually enjoy the next step of his life,
rather than it being a necessary evil. She visited all of the local adult
respite places and even rated them from her own perspective, but encouraged us
to visit each one to make up our own minds. I am confident that she too is
determined to find somewhere suitable for Joshua’s needs. We have prioritised
Respite as his current facility cannot have him beyond 18, whereas he can stay
at school , in 6th form, until he is 19 so we have an extra year to
find daycare solutions. So far we have looked at 2 of the 4 in our local authority
area and I plan to get round the others this month. Joshua had to go out of
area for his current short breaks and we have been reassured that if there is
nothing suitable locally, we can argue that Joshua’s needs can only be met by a
provision out of area. So far I have to say that I have found nothing that
comes close to his current provision. I will not compromise, he will not be
going somewhere mediocre just because it is local. I now know what I am looking
for, as we have experienced the best, and I will keep searching until I find
I have never been good at change, it always seems to be forced upon us just when things are settled. I can recall begging Joshua’s nursery school head teacher if he could stay with her until he was 16 please. She replied kindly, “No Emma, he can’t, he will get to be too big for the furniture here”. We made the move to mainstream primary, then to a special school and then to his current special school so, given that I hate change, we have done a fair amount of it in Joshua’s 17 years and of course, we survived. The difference is that this time we have a social worker by our sides who will help us to negotiate our way through this mysterious maze and help to pull us through – I am sure.
As we approach March 5th, I will update you on how we are handling transition and will outline the highs and lows that we are bound to face. I sincerely hope that our experience may help some of you who might also have a son or daughter who is approaching this critical age. I do not want to scare those readers who have ten year-olds now, but this Transition will come much faster than you think, so it is worth thinking about it sooner, rather than later. If I had read that in 2011, I know I would have ignored that advice, thinking that it was not relevant to me, but I would urge you not to be an ostrich like I was. Perhaps you can learn from my mistakes, so that you can hear the ‘transition’ word without a shudder.
You can read more from Emma in her article ‘Introduction to us‘ and on her blog Ups and Downs Mum. If there are any topics you would like her to write about let us know in the comments.
We held our Christmas raffle draw on Wednesday 19th December and had a very special guest do the honours.
Seven year-old Imogen has had an impressive year having climbed Pen y Fan with a little help from our Innovation Centre and it only seemed right that she should help us with this very important job!
We were also joined by Neil Robinson from Specsavers, who named us as their charity of the year in south and mid Wales and have done amazing for us over the course of the year.
We had our giant tombola filled with over 100,000 Christmas raffle tickets that our generous supporters had purchased and Imogen dived right in, choosing the three top prize winners and ten runners up.
The top three winning tickets are below and the rest will be available here soon. Check your tickets!
Christmas is a time for joy and for making dreams come true. At our Innovation Centre we believe that all children can achieve their dreams, however big or small. This Christmas we are celebrating twelve fabulous ways our Innovation Centre have made dreams come true this year:
A Tandem Surfboard which is helping children across the world experience the thrill of the waves
A Swing Harness to keep Owen safe as he soars with his sister
A Rocking Horse with the proper support for children as they play
Rocket Shelves, a trendy, mobile solution to store medical equipment
Bounce, play, exercise and training for bounce happy bigger kids
Boats and Bikes - all the equipment and support needed to help children compete alongside able-bodied athletes in triathlons and runs
An Oxygem so that Amelie can be independent while still taking her life saving oxygen with her
A clever Back Carrier so that Alannah can take both of her children out at the same time
A Spinning Pod which helps children like Curtis feel grounded and independent
An adapted four-wheeled Mountain Bike which helped Imogen to scale the heights of Pen-y-Fan
A Doodle writing slope to help children with their writing, drawing, posture and hand control
A Tennis Ball Shooter so that Harry can throw tennis balls for his beloved support dog Addi
We want to help even more children to achieve their dreams, however big or small. So if we can help your family please get in touch with us and let’s make 2019 a year to remember.
Have you been told that your child can’t have the type of continence product that she needs? Are you concerned about the quality of the products you use? Read on to find out what you can do to make sure your child gets suitable products.
We also know from our work with families that the type and/or quality of products can cause problems too. We recently heard from a parent who wanted ‘pull-ups’ for her daughter instead of nappies. She was told that her local health authority didn’t supply them and she contacted the LEaP Project for help.
We wrote a template letter to help the parent make a complaint to her local health authority. Our letter quotes from the relevant guidance, which makes it clear that children should be assessed and provided with products which meet their individual needs. We wanted to share this template letter with other families who might find themselves in a similar situation.
So, if you’ve been told that your child can’t have the products s/he needs, you can use our template letter to make a complaint. We have separate versions for England and Wales.
We’ve got a great new children’s book in our library that explores the consequences of being different. ‘That dog has got a beard!’ is all about Buster who feels sad and worried because every time he goes out for a walk people stop and stare at him. He doesn’t know why this is happening but with a little help from his family, he begins to realise that being different isn’t such a bad thing after all.
Author Natalie Ann Beattie told us a little bit about herself and the reasons why she wrote the story:
“First and foremost, I am a mother of two young children, Ethan and Isobelle. Ethan is 13 years old and Isobelle is 6. My son Ethan has Autism and ADHD, which are both very challenging and complex conditions. Before becoming a full-time mum and carer for Ethan, I was a Primary teacher for almost 10 years. I taught children from the age of 3 up to 11.
When my son was a little over 18 months things began to change, he stopped speaking and eating, and his behaviour became challenging and repetitive. I left my teaching to focus on his care, and at the tender age of 4 he was diagnosed with ASD and, two years later, ADHD. I have spent the last 10 years plus gathering all the appropriate help and support required to manage his condition and thus enable him to develop socially, as well as mentally and physically. As you can imagine, it has been an incredibly difficult and challenging journey for all of us. However, the time has come to use all those years of experience in a positive and fulfilling way.
“That dog has got a beard!” is essentially a story about a dog who, because of the way he looks attracts a lot of unwanted attention from other people. When the owners of the other dogs start talking about Buster’s beard and laugh at him, he becomes sad and worried and struggles to work out why he is different to everyone else. Fortunately, with the help and love of his family he learns to embrace his difference and become a happy dog once again.
The story is loosely based on some of the negative responses we have received as a family when we have gone out together with Ethan and something has triggered a ‘meltdown’. The frequent stares, snide remarks and hurtful comments have been devastating and a cruel reminder of the need for people to accept and become more aware of children and adults with autism. We have learned to embrace our son’s condition and to see him as a very special and wonderfully unique young person. I felt that now was the time for the rest of society to appreciate his autism and learn to celebrate, not mock, other people’s differences, whether they be physical, mental or behavioural. In essence, for society to accept him, not the other way around.
The second reason for my story is a simple one. Every time we go out for a walk with our Labradoodle, Buster, people stop and make a comment about his beard. The phrase ‘that dog has got a beard’ was one that I heard so many times that it sparked off the idea for the book. How often do you see a dog with a beard? Especially one that is 7 inches long! Buster is a wonderful dog and has an amazing temperament. He is loved wherever he goes and we are regularly invited to schools, mother and toddler groups, sports clubs and residential homes to do book readings. Buster is a hit with all ages.
Thank you Cerebra for including my book in your library.”
The Workshops are run by our trained facilitators and will help parents and carers to access health, social care and other services for their children. They include case studies and template letters on direct payments, respite care, Disabled Facilities Grants (Disabled Home Adaptations in Scotland), residential placement and school transport. By the end of the workshop, parent/carers will be able to:
Identify commonly occurring problems facing families accessing services and recognise different types of dispute
Come up with problem-solving approaches to these problems
Use a number of template letters when corresponding with public bodies
The workshops have also been accredited by the CPD Certification Service.
The workshops are free of charge and open to any organisation or parent/carer forum that supports children with a brain condition. They usually run from 10am to 2pm to fit in with the school run. All we ask is that the organiser provides a venue (with a projector), the attendees (a minimum of 10 and maximum of 25) and that there is a 30 minute lunch break. It’s up to the organisers whether they provide refreshments or ask those attending to bring their own.
The workshops have had great reviews and some of the feedback includes:
“The training was very useful and highlighted to me how much I roll over when asked. I now feel empowered to be able to get those things which my son needs”.
“I found the information really helpful also and feel sure it will help me support our families better in tackling some of the issues we discussed”.
“Thank you again for your support through our journey, we do not regret making the complaint, nor where we are now. Too many people here do not get the support they are entitled to but we were the ones that stood up”.
“Knowledge is power! We need as many of these sessions as possible to enable us to take action”.
If you are interested in hosting a workshop then please get in touch with[email protected].