Innovation Centre help Livia gain independence

Mum Alanah recently approached our Innovation Centre with a challenge that would help maintain her daughter’s independence while keeping the whole family safe on shopping trips.

We received Livia’s diagnosis of cerebral palsy just after she turned 2, and when I was 8 months pregnant with my second child. Suddenly the logistics of looking after two children had become more involved. I knew Livia was struggling to walk, but I thought that after a bit of help she’d learn and would be running alongside the newborn’s pram or riding on a buggy board.

Initially after our second’s arrival things were pretty straight forward. Livia continued to ride in her stroller and the second was carried in a sling. When Livia did want to get out and walk she would hold onto the back of the stroller to steady herself and help me push that along. This resulted in lots of tripping and falls and was frustrating for all of us.

When our second was 4 months old Livia’s Kaye walker arrived. This was very exciting and gave us a step up in our independence and ease of getting around. Livia was willing to take short journeys with it, which was great when popping into shops that we could park outside or walking into the park from the car, or visiting a friends house. But anything further than a few minute walk was daunting for her and time restrictive for me. So the pushchair came back out, but how was I going to carry a newborn, push a stroller and bring her Kaye walker should she want to walk?

I felt terribly guilty if I didn’t bring her walker along. I felt I was stopping her from being independent when all of her friends and others her age were up and running freely. I purchased a tandem double pushchair and intended to carry the walker. We did one trip like this, ouch! My shoulder was so sore from where it had dug into me that it was obvious that this wasn’t going to be an option. So I went back to carrying the baby and slotted the walker onto the back seat of the pushchair.

Now the newborn was getting heavier and spending a lot of time ‘bouncing’ in the carrier. I’m not the biggest built person either, so carrying her everyday whilst pushing a toddler, all of the essentials you need and a Kaye walker was getting really tricky. There was also the challenge of when it rains or is really sunny. I don’t have a rain cover for the baby  carrier and we all know how hard it is encourage a baby to keep a sun hat on, so I really needed her to go back into the pushchair. I am part of a cerebral palsy support group on Facebook, so I posted on there asking other mums what they do. A lady responded telling me to give Cerebra a call.

I spoke to Ross Head in the Innovation Centre and explained my predicament. He told me he’d made a back carrier for someone before. He took the walker size and said it’d be with me in a few weeks. About 5 weeks later he emailed to say the carrier was on its way and how to use it. I am absolutely delighted with it. Ross took a standard backpack and added some straps and metal hooks to it. The walker hooks over the top and is secured in place by some bungee cords. At the bottom he has added some velcro straps that secure the walker from bouncing around when I walk. Once strapped in place it’s hardly any weight at all. I now can keep both the children in the shade or out of the rain, they can snack and play with toys whilst I get us all to our destination with relative ease.

I am now racking my brains of how to challenge Ross further, what else isn’t on the market that could help make my family life easier…? I hope my story gives someone the knowledge to give Ross a call and talk through your dilemma. He’s a wizard! Thank you Ross and Cerebra.

If you have a challenge that you think the team at the Cerebra Innovation Centre can help with, get in touch! You can contact them via email at [email protected] or by phone on 01792 483688.

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