Samuel’s mum Joceline recently contacted our Innovation Centre. As a member of a parent group on Facebook, she had seen how another child had benefited from our Oxy-gem. She knew that it would be perfect to help Samuel. Three year-old Samuel has Down’s Syndrome and small airways disease. This means that he is on oxygen […]
Samuel discovers freedom with his Oxy-gem Read More »
We’ve crunched the numbers, we’ve checked them twice and now we can reveal our most popular posts from 2018. 5. Is your child getting unsuitable continence products? If you’ve been told that your child can’t have the continence products they need, you can use our template letter to make a complaint. 4. What can I
Can you guess our most popular post from 2018? Read More »
This year we have been chosen to benefit from the Co-op Local Community Fund. At a time when funds for charitable organisations are becoming more difficult to access, we are incredibly grateful for this opportunity to make real difference. We are raising funds so that we can continue our work to help families who have
Cerebra to benefit from Co-op Community Fund Read More »
Rare genetic disorders are caused by changes in a person’s DNA (their chromosomes). These changes vary in size. That means they can either affect a very small part of someone’s DNA, or the changes can be bigger and affect a larger area. Some rare changes to our DNA can lead to serious impacts on our
Cerebra and Cardiff University collaborate to advance support available to families Read More »
Emma tells us about the period of transition that her son, 17 year-old Joshua is about to face and the services that are available to help the transition. I have always feared Joshua becoming older as it felt like a step into the unknown. Every birthday sounded so much older than the year just gone,
Joshua’s Transition Part 1 Read More »