We are working with other charities to understand how we can better support children with brain conditions and their families and we need your help.
We want to understand what life is like for the people we represent. We want to learn about the realities of living with more than one neurodevelopmental condition (diagnosed or not).
Our partners in this project include Autistica, the Neurological Alliance, MQ, Tourettes Action, Afasic, Epilepsy Action and many more. We all want to make sure families are properly supported. Working together we have developed a survey to understand the reality of life with a neurodevelopmental condition. Our goal is to understand what support and services are making a difference and where there are gaps in the help families need.
The more responses we get, the more we will understand about how to improve the support families receive and how we should be targeting our work.
So if you want to see better services for people with neurodevelopmental conditions have your say here. It would be great if you could also share it with your family, friends and other contacts.
Thank you. Together we can work wonders for children with brain conditions.