Research Advisory Committee – Call for applications

We are recruiting to our Research Advisory Committee. In this article you can find out more about what Cerebra does, the types of research we support, the role and responsibilities of the committee, your eligibility and how to apply.

Cerebra’s role

We believe that every family that includes a child with a brain condition should have the chance to discover a better life together. We listen to families that have children with brain conditions. We use what they tell us to inspire the best research and innovation. Then we help them put the knowledge into practice so they can discover a better life together.

By ‘brain condition’, we mean any neurodevelopmental disorder (NDD) that affects the developing brain, including those caused by illness, genetics or traumatic injury. Brain conditions include (but are not limited to) autism, ADHD, Down’s syndrome, learning disabilities, cerebral palsy, epilepsy and developmental delay.

Our key values are summed up in three key words:

Positive: our optimism helps families see past every barrier.
Inquisitive: a spirit of relentless discovery drives everything we do.
Together: our researchers, practitioners and families go further when they travel together.

Current clinical practice identifies each condition individually with its own set of identifying characteristics, but many neurodevelopmental disorders (NDD’s) occur together and/or share similar risk factors, behaviours and challenges. Thinking is gradually changing and ‘multi-morbidity’ is accepted as the norm. We work across rather than within NDD’s, giving us a unique perspective within the charity research sector.

The types of research we support

At Cerebra, we support two research approaches:

  • Research aimed at reducing the prevalence of preventable disabling conditions and thereby limiting the number of children whose health and wellbeing are likely to be adversely affected.
  •  Research that addresses a range of measures to ensure family needs are recognised and met.

Our current research portfolio reflects both approaches. Our research grants run from 1st January 2013 to 31st December 2019 and over that period, we will invest £4,213,689 in research.

Role and responsibilities

The role of the committee is ultimately to advise Trustees on the relative merits of particular pieces of research. As such, you will be invited to participate in grant application reviews, evaluate the impact of our current research and provide scientific advice which will inform Cerebra’s research strategy.

Grant reviews will involve reading, evaluating, submitting scores and comments on grant applications within an allotted time frame, and attend meetings.

Evaluating the impact of our current research will involve reviewing documentation and potentially site visits.

This is a voluntary role but out of pocket expenses, including travel and subsistence to attend meetings and site visits, will be paid. Commitment is crucial and time constraints will apply to allow us to complete our work and deliver on our commitments in a timely manner.

Are you eligible?

Applications are invited from individuals with a publication record in research (clinical and applied research in the fields that fall under Cerebra’s remit), success in obtaining research grants / awards and a willingness to devote the necessary time.

Posts are formally available from April 2018 and appointments are for a three-year term in the first instance.

Individuals who are interested in applying for one of these posts, or just want more information are encouraged to contact Georgia Mappa at GeorgiaM@cerebra.org.uk with any queries.

The terms of reference and governing documentation for this committee can be downloaded here.

How to apply

Applicants should submit a brief CV giving details of previous key posts, current post, roles in relevant committees and six most relevant publications. This should be accompanied by a written statement (maximum 1,000 words) which covers relevant previous experiences and expertise.

Applications should be submitted by 16th April 2018 and directed to Georgia Mappa at GeorgiaM@cerebra.org.uk

Successful applicants will be invited to join a welcome meeting with Cerebra staff.

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