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Cerebra Impact Report 2023
Each year we publish an Impact Report outlining the progress we have made towards achieving our vision of giving every ...
Read More Nominate a Young Person for the Child of Wales Awards 2024
The awards will recognise and celebrate children and young people who face hardships and challenges every day. Individuals who are ...
Read More Embracing Complexity: Top 10 Priorities for Research on Neurodivergence
Embrace Complex coalition carried out the Research Priority Setting to identify what areas of research are the most important to ...
Read More Traumatic Brain Injuries in Children: Causes and Prevention
What is a Traumatic Brain Injury? Traumatic brain injury (‘TBI’) is an injury to the head caused externally by a ...
Read More Practical, Helpful And Effective Support From Our Sleep Service
“Our daughter Verity is 11 years old. Verity absolutely loves to read and to write her own stories too. She ...
Read More Does your young boy with cerebral palsy want to be an actor?
'Happy Snaps' is inspired by the writer's brother's real life story. He grew up with cerebral palsy and spent his ...
Read More Research Journeys: Breaking down barriers: Access for all
"In identifying the barriers to disability rights implementation we can begin to understand why and how some services are accessible ...
Read More Our postal library is as popular as ever!
We have added over 90 new books to the library over the last year on subjects such as autism, PDA, ...
Read More Positive Family Connections Report
Our partnership with Centre for Research in Intellectual and Developmental Disabilities (CIDD) at the University of Warwick focusses on family ...
Read More Fidgeting Fun For Faith
Mum Louise introduces us to her daughter Faith and explains how borrowing a Fidget Kit from our Toy Library has ...
Read More Research Into Sibling Relationships
The Cerebra 1000 Families Study is exploring the experiences of families who live with a child with a learning disability ...
Read More Intrauterine Growth Restriction and neurological injury by Amy Milner
Intrauterine growth restriction – what is it? Intrauterine growth restriction (IUGR), also called fetal growth restriction (FGR), occurs when a ...
Read More A response to the consultation: Reviews of Education, Health and Care plans: proposed timescales
Response to the government's consultation to increase the time a local authority has to issue draft amendments to an EHC ...
Read More Working Together to Safeguard Children: Changes to Statutory Guidance
Response to the government's consultation proposing changes to Working Together to Safeguard Children guidance which concluded on 6 September 2023. ...
Read More Double the Fun for our Next Cerebra Superhero!
We're very excited to welcome James to Team Cerebra! James will be taking on two running challenges to raise money ...
Read More A look at the quality of decision making by the Local Government and Social Care Ombudsman
In December 2023 the Local Government and Social Care Ombudsman published its annual report. A section on internal reviews (1) ...
Read More Written evidence submitted by the Legal Entitlements and Problem Solving (LEaP) Project, Cerebra
We have published our evidence to The Education Committee, which is assessing the current system of children's social care in ...
Read More Dr Hayley Crawford
Dr Hayley Crawford is an Associate Professor at Warwick Medical School and network lead for the Cerebra Network. Alongside Dr ...
Read More Professor Caroline Richards
Professor Caroline Richards, Professor of Neurodevelopmental Conditions, is a Clinical Psychologist and researcher at the University of Birmingham. Caroline leads ...
Read More Dr Jane Waite
Dr Jane Waite is a Senior Lecturer at Aston University and a Clinical Psychologist. As a co-lead for the Cerebra ...
Read More Dr Jo Moss
Dr Jo Moss is a Senior Lecturer at the University of Surrey. Jo leads the Cerebra Network research in autism, ...
Read More Have You Applied for a Disabled Facilities Grant (DFG) for your Disabled Child?
This is your chance to feed back your experience of applying for a Disabled Facilities Grant to the government because ...
Read More Cerebra Sleep Project Study
What is the Cerebra Sleep Project looking at? The study is looking at how sleep difficulties and daytime behaviours interact ...
Read More Can you take part in the Checklist Project research study?
Does your child have a moderate-profound learning disability? The Neurodevelopmental Conditions Research Lab at the University of Warwick and the ...
Read More What commonly goes wrong to cause types of birth injury and why?
Birth injury statistics Giving birth is not easy and can be a traumatic experience for all, even if things go ...
Read More Podcasts for Family Carers
If, as a carer you sometimes feel lonely, isolated and that nobody else in the world is going through what ...
Read More SNAP Cymru presents: From SEN To ALN
From SEN To ALN - Tuesday 23rd January 2024 from 7:00pm until 9:00pm A FREE online event for professionals, parents ...
Read More SNAP Cymru presents: Mind the Gap!
Mind The Gap - Wednesday 17th January 2024 from 6:00pm until 9:00pm A FREE online event for professionals, parents and ...
Read More Working with families to find sleep solutions
Sami explains how his family were able to adapt suggestions from one of our Sleep Practitioners leading to a better ...
Read More Support and understanding from our Sleep Advice Service
Emma introduces us to her son Arthur and explains how our Sleep Advice Service was such a support. Tell us ...
Read More Without Cerebra’s Sleep Service I don’t know where we’d be
"Without the help of Cerebra’s Sleep Service I don't know where we would be. As a family we were all ...
Read More Family Trauma: A Broken Care System
The University of Kent's Tizard Centre has been collaborating with the Challenging Behaviour Foundation, which provides support to families who ...
Read More New Library Books this November
New Books in the Library - November 2023 L7001 - What Works for Autistic Children by Dr Luke Beardon L7002 ...
Read More The feasibility and effectiveness of tailored behavioural sleep interventions for children with neurodevelopmental conditions.
Researchers at Aston University are working in partnership with Cerebra to understand how practical and effective behavioural sleep interventions are ...
Read More Fabricated or Induced Illness Research Report
The findings of a major research project concerning FII have been published today. This research report considers the prevalence and ...
Read More Falling to sleep alone and waking in the night
Mum Gabby got in touch to tell us how her three year old son Theodore was not only struggling to ...
Read More Specific phobia in children with learning disabilities
In this seminar, Professor Kylie Gray presented the findings of the study titled “Specific phobia in children with learning disabilities ...
Read More New Sleep Training Course for Professionals
We are delighted to announce that we will be holding a pilot of our brand new Cerebra Professionals Sleep Training ...
Read More Our Sleep Service provides a listening ear alongside practical guidance
"Logan came to live with us when he was 2 years and 9 months old. He was diagnosed with autism ...
Read More Lifestyle interventions during pregnancy improves child neurodevelopment
Structured interventions during pregnancy, such as those centred on a Mediterranean diet or mindfulness-based stress reduction, can improve child neurodevelopment ...
Read More The Mediterranean diet and maternal stress reduction during pregnancy improve infant neurodevelopment
Interventions based on the Mediterranean diet or mindfulness to reduce stress during pregnancy improve the neurodevelopment of children in the ...
Read More Buttons and Bubbles: Representation through Imagination
"About a year ago, I had an idea to set up a company and to create a whole brand representing ...
Read More School Transport: what will the Department for Education’s updated guidance mean for disabled children and their families?
In June 2023, the Department for Education published the long awaited revised school transport guidance, Travel to school for children ...
Read More Free webinar: Diagnostic overshadowing
Free webinar: Tuesday 21st November 6.00pm-7.30pm Diagnostic overshadowing presents a significant challenge for parents and carers of children with intellectual ...
Read More Having Fun With Our UV Fun Tub!
Mum Koral introduces us to her daughter Evangelina and explains why our Library Service has made such a difference to ...
Read More Making the call
Reasons to seek legal advice about a potential claim for compensation for a child with a brain injury or condition ...
Read More Autistica is building the Autistica Neurodiversity Employers Index (NDEI)
Autistica are looking for 200 companies who want to review their neurodiversity inclusion practices. You may already be actively championing ...
Read More Free Wills Month – What does it mean?
Free Wills Month occurs every March and October where participating solicitors will be offering people 55 of over the chance ...
Read More Independence for Arlo
Two year old Arlo likes going on walks, playing with his blocks and reading books. He is a happy little ...
Read More Case Management following an acquired brain injury
What is case management? Paediatric Case Management is the planning and coordination of therapeutic, medical, and social care to promote ...
Read More Finding Calm At Bedtime
Four-year-old B has sensory issues as well as developmental issues, particularly around communication. It was taking B a long time ...
Read More Books in the Library on Sleep
Here's a list of our library books about sleep available to borrow this Sleeptember L6325 – Sleep Disturbances in Children ...
Read More Toys For Harley To Discover
Mum Lisa got in touch with our Toy Library in the hope of finding some toys that her son Harley ...
Read More Amelie Is Going Places On Her New Skateboard
Six-year-old Amelie is a bubbly and happy little girl. She loves playing outside and worships her little brother, Arthur. They ...
Read More An Adapted Camera For Budding Photographer Archer
Mum Amanda explains how our Innovation Centre were able to cleverly adapt a camera so that her son could enjoy ...
Read More Rhys Makes A Splash With Our Innovative Paddle Board
Teenager Rhys has a rare, progressive genetic condition which affects his extremities and his physical strength. While he has tried ...
Read More Helping The Whole Family To Play Together
Our son Sam has Angelman Syndrome and needs assistance with all aspects of life. He is developmentally delayed, non-verbal, has ...
Read More Our Toy Library Brings Excitement And Wonder
Mum Victoria tells us their story: Can you tell us a little about your family? Our twins Charlie and Daisy ...
Read More Have your say: Reforms to Assessment and Safeguarding procedures
A strong sense of despair and hopelessness comes over me whenever I am asked to respond to (yet another) Government ...
Read More Brain injury after severe illness and sepsis
Childhood viral and bacterial illnesses are common, and usually are easily treated. Sometimes, however, if the symptoms are left too ...
Read More Is all this research actually doing anything?
This post is a summary of the conversation between the researchers and two undergraduate interns hosted by the Centre for ...
Read More Videos of our Annual Conference are online!
On 14th June 2023, we hosted our in-person conference in Birdcage Walk, Westminster. The conference theme was Barriers to Breakthroughs: ...
Read More Books in the Library on Pathological Demand Avoidance
The library has been getting a lot of requests to borrow books on Pathological Demand Avoidance in recent months, so ...
Read More Exploring the Benefits of Lifestyle Interventions in Pregnancy
Pregnancy is a critical period where the health and wellbeing of both the mother and the developing baby are of ...
Read More Covid 19 and Digital Inclusion
This seminar, delivered by Dr. Sue Caton, explores the findings of the study titled "Coronavirus and People with Learning Disabilities ...
Read More Cerebra and the University of Leeds Continence Survey 2023
Cerebra has frequently received reports from families who have encountered difficulties when trying to access continence supplies for their disabled ...
Read More Breaking Waves and Breaking Barriers
Cerebra recently helped a New York schoolboy to build one of the first custom adaptable surfboards in the United States! ...
Read More Hospital Saturday Fund donates to Cerebra at 150th anniversary event
Huge thanks to The Hospital Saturday Fund for their wonderful gift of £4,500 as part of their 150th anniversary celebrations ...
Read More BBK’s Free ENS Legal Clinic
BBK’s specialist Child Brain Injury solicitors are launching a dedicated and free of charge legal Clinic for parents of babies ...
Read More We’ve just added some new items to our e-library!
Our BorrowBox library has a selection of e-books and a-audiobooks that parent/carers can borrow to read or listen to and ...
Read More Advice, Support and Information – A Family Story
“Our son J is three years old. He’s a little firecracker with a vibrant personality and he loves to play ...
Read More Struggling To Get To Sleep With Tourette Syndrome
Our Sleep Advice Service is there to help your child - and you - get a good night's sleep. In ...
Read More We’ve just added new books to the Library!
New books in the library from May 2023 L6977- Sensory Parenting for Sensory Children by Tanya van Dalen L6978- For ...
Read More Advice On Accessing School Transport
Our Legal Rights Service was recently able to help a family to access school transport for their daughter. Mum D ...
Read More Dealing With Nightmares
“Our son is 11 years old and has Asperger's syndrome. He is an animal lover and seems to know everything ...
Read More A Good Night’s Sleep Has Transformed Our Family Life
“Annabelle loves being active - running, jumping, climbing, swinging etc. She also loves water, whether it be in a bath ...
Read More Update to our Postal Library List
We have made some improvements to our library book list. We have made it easier for you to see which ...
Read More Our Library Boosts A Family’s Wellbeing
"Four year old L is an active child who loves trying to climb on things and people (with a bit ...
Read More Introducing Wizzybug – the fun way to get around for children with physical disabilities
The Wizzybug is an innovative powered wheelchair modelled on the ‘Little Tikes’ car, aimed at younger children with limited mobility ...
Read More England: Important Consultation for Disabled Children and Young People
The Government is carrying out a consultation on its vision of how to reform children’s social care in England. This ...
Read More Wales: Implementation of the ALN Act Extended Until August 2025
On March 20 2023, Jeremy Miles MS, Minister for Education and Welsh Language, issued a written statement announcing that the ...
Read More What is HIE and how is it linked to Cerebral Palsy?
What is hypoxic-ischemic encephalopathy (HIE)? Hypoxic Ischaemic Encephalopathy, otherwise known as “HIE”, is a technical term describing brain damage caused ...
Read More Meet our Cerebra Superhero Runners
These amazing Cerebra Superheroes tell us all about why they are running the 2023 London Landmarks Half Marathon for us ...
Read More Helping Lu and her parents with those sleepless nights
Lu is 3 years and 8 months old and we recently had the pleasure of helping her and parents, Katherine ...
Read More Seminar Review – Stigma and People with a Learning Disability
The first CEDAR seminar of 2023 was by Katrina Scior, Professor of Clinical Psychology and Stigma Studies at University College ...
Read More Book review: Proud to Be Differently Me
Proud to Be Differently Me written and illustrated by Nazryn Nock Rainbow bear loves to play games and dance and sing, ...
Read More Raising vital funds with ‘Givto’
Back in September 2022 we were thrilled to feature on Givto, a new charity donation service, and raise vital funds. ...
Read More Bertie Learns How To Sleep On His Own
Mum Chante got in touch with our Sleep Advice Service for some help with her son’s separation anxiety and nightmares ...
Read More Cerebra Legal Entitlements and Problem-Solving Project Conference
On 18 October 2022, the University of Leeds School of Law hosted the Cerebra Legal Entitlements and Problem-Solving Project Conference: ...
Read More Accessing School Transport for Disabled Children – Progress
Local authorities have a duty to make travel arrangements for all eligible children. Cases referred to our Legal Entitlements and ...
Read More Practical approaches to resolving commonly occurring health and social care difficulties
John Furlong and Derek Tilley work within our Legal Entitlements and Problem-solving Project. They help families to understand what their ...
Read More Digital Wellbeing Interventions For Family Carers
Joanna Griffin, project lead, family carer and Assistant Professor, CEDAR, introduces a new systematic review of digital wellbeing interventions for ...
Read More Stacey’s Global Adventure Challenge for Cerebra
Superstar fundraiser, Stacey Bryant from Enable Law recently took on an epic challenge for Cerebra - trekking 90km over 5 ...
Read More Jingle All The Way!
We were delighted to provide our friends at Chiltern Music Therapy with one of our specially made sensory drums. And ...
Read More Cerebra webinar review – Fathers of disabled children: supporting their wellbeing
Led by Dr Emma Langley (Assistant Professor, University of Warwick), alongside members of the Fathers Active In Research (FAIR) group ...
Read More Thanks for helping us reach our Big Give Christmas Challenge goal!
We just want to say thank you so much to everyone who supported us and contributed towards our Big Give ...
Read More Extending the Precision Teaching Framework
Athanasios (Thanos) Vostanis, Lecturer in Intellectual and Developmental Disabilities at the University of Kent, opened the November CEDAR seminar series ...
Read More Aquatic therapy – the benefits of water-based therapies for children living with disabilities
Laura Cook at CL Medilaw and Dr Heather Epps, Physiotherapist and Director of Aquaepps and Lymden Hydrotherapy and Physiotherapy (LHAP) ...
Read More Making a Noise!
Mum Emese told us that they lost most of her daughter's toys to smoke damage during a house fire earlier ...
Read More New Titles in our BorrowBox Library
We've got four new eBooks available free for a limited time in our BorrowBox library! The Reading Agency have recently ...
Read More Our Engage to Change Champion!
Ffion joined us as a Library Assistant through the Engage to Change Project. We are thrilled that Ffion's enthusiam, passion ...
Read More Getting Direct Payments For 1:1 Support
Ben* is 6 years old and has autism, ADHD and epilepsy. His parents have to work long hours and need ...
Read More Protecting vulnerable children during the cost of living crisis
Now is the winter of our discontent. Historically, winter has evoked different reactions in all of us - some of ...
Read More Welsh Government Publishes ALN Guidance for Parents and Carers
In September 2021, as part of the Special Educational Needs (SEN) reform the Welsh Government began the phased transfer from ...
Read More An early Christmas present for Henry
You may well remember, back in the spring, we told you all about Henry and the super-lightweight crutches our Innovation ...
Read More Our Sensory Drums hit all the right notes!
Our Sensory Drums are wooden crafted with patterned sides that allow children to combine different touches and sounds. There's a ...
Read More Mayson Can Play With Toys He Likes
Our son Mayson is two years old. Mayson had a bleed on the brain and as a result had a stroke. ...
Read More Challenging Parent Carer Blame
Disabled children and their families are one of the most severely disadvantaged groups in the UK. A major research report ...
Read More How I overcame my disability to achieve a dream
I’m Paddy. I’m 25 and I’m from a small village in the countryside near Brighton. I was born with a ...
Read More 1000 Families Study: Relationships And Wellbeing
Caitlin Williams is a Cerebra funded PhD student at the University of Warwick. Her first PhD study used data from ...
Read More 1000 Families Study – Latest News
The aim of the 1000 Families Study is to explore the wellbeing of children with learning disability, siblings, caregivers, and ...
Read More Advocating For Disability Rights
Ketevan Khomeriki gives a fascinating insight into her work as a disability rights advocate in Georgia. She explains how being ...
Read More Positive Family Connections – Latest News
Positive Family Connections is a new online 6 week programme for families who have a child with additional developmental needs ...
Read More Look at our new selection of library books!
These new books are available to borrow from our library now. Here's the full list: C0425 - People an interactive ...
Read More ‘Doodle the Poodle’s Big Day Out’ by Melissa Cassidy
A colourful picture book that young children will enjoy. Doodle the Poodle goes out for a walk to his local ...
Read More Elijah Explains How Cerebra Helped Him To Find Toys He Enjoys
Hi, my name is Elijah. I am 3 years old. I have Down syndrome and have an extra chromosome - ...
Read More Books For Mum And Toys For Thomas
"My son Thomas is 4 years old. He was diagnosed autistic around his 3rd birthday. Thomas also has sensory processing ...
Read More How a Claimant’s Solicitor and Court of Protection Deputies Work Together to Provide a Holistic Approach to Clients
At Pryers Solicitors, as medical negligence and personal injury specialists, we unfortunately see many clients who have suffered some form ...
Read More Book Review: ‘Employing Care Staff in Your Home’ by Cecily Lalloo
Amongst the scariest challenges of caring for your disabled child at home is employing people to help you. Yes you ...
Read More What does anxiety look like?
Dr Hayley Crawford began the June CEDAR seminar by highlighting that autistic people and people with intellectual disabilities are at ...
Read More A response to the SEND Review: Right support, right place, right time.
This is our response to the SEND Review: Right support, right place, right time. This response is prepared on behalf ...
Read More How rehabilitation and support can help a child with an acquired brain injury to flourish and reach their potential
My team and I are both proud and privileged to act for the most amazing, brave and courageous clients - children ...
Read More Dr Caitlin Murray – The Importance Of Family Research
My name is Dr Caitlin Murray and I am a Research Fellow in CEDAR at the University of Warwick. I ...
Read More Dr Joanna Griffin – Involving Family Carers in Research
My name is Dr Joanna Griffin and I am a parent carer, Counselling Psychologist, and an Assistant Professor in CEDAR, ...
Read More Dr Paul Thompson – Applying Statistical Methodology To Real World Problems
My name is Dr Paul Thompson, and I am a Research Fellow in Applied Statistics in CEDAR at the University ...
Read More Dr Samantha Flynn – Research That Has Positive Impact For People With Learning Disabilities
My name is Dr Samantha Flynn and I am an Assistant Professor in CEDAR at the University of Warwick. I ...
Read More Cerebra and the University of Leeds FII (Fabricated or Induced Illness) Survey
Cerebra has become increasingly concerned over recent years with an apparent rise in reports from families with disabled children which ...
Read More Draft Mental Health Bill published: Here’s a Potential Health Warning
The Government published the long awaited Draft Mental Health Bill on 27 June 2022 which applies to England and Wales. ...
Read More The Health, Healthcare And Wellbeing Of Adults With Intellectual Disabilities
Tammy Rutter The dedication of Professor Mary McCarron and her team to inclusive research which brings about meaningful change for ...
Read More Cerebra Annual Conference
Wednesday 14th June 2023, 9.30 - 16:30 One Birdcage Walk, Westminster, London, SW1H 9JJ This one-day conference will host talks ...
Read More New Books for Adults in our Library
We have a range of new books aimed at adults that you can now borrow from our postal library. L6929 ...
Read More New Books in our Library for Children
We have some new children's books available for you to borrow from our library: C0396 - Thriving with ADHD: workbook ...
Read More ‘The Autistic Side of Love’ by Samuel Turner
We are so thrilled that Samuel Turner has added to his achievements by writing a book. Samuel has volunteered for ...
Read More Superhero fundraiser completes epic 360-mile cycle challenge for Cerebra in just 3 days!
You will recall earlier in 2022 we introduced Swifty, from PCB Radio based in Worcester, who called us up to ...
Read More PVL and the link to Cerebral Palsy
PVL - what is it? Periventricular Leukomalacia, commonly referred to as PVL, is a form of injury to the white ...
Read More Acquired Brain Injury and Litigation
Common causes of brain injury Sometimes a child sustains a brain injury at birth or because of a medical reason, ...
Read More Introducing Cerebra PhD Student Lauren Jenner
Lauren Jenner is a PhD student at the University of Surrey using novel methodologies to understand social abilities and autism ...
Read More School attendance in children with neurodevelopmental conditions one year after COVID-19
Emma Taylor Associate Professor Dr Vaso Totsika opened her CEDAR Seminar Series talk by explaining how, before COVID-19, rates of ...
Read More Giving You The Information Your Family Needs
"My daughter is nearly 12 years old and we suspect she may have autism. We have just completed documentation for ...
Read More Our response to the publication of The Independent Review of Children’s Social Care in England
In a sense, Josh MacAlister’s independent review of children’s social care was always going to disappoint. Billed as a “wide-ranging, ...
Read More Wales: update on the transition from the SEN to the ALN system
The Welsh Government has recently issued two written ministerial statements updating the phased transition from the special education needs (SEN) ...
Read More Disabled Children and the Equality Act 2010: What teachers need to know and what schools need to do
Schools have a range of duties under the Equality Act 2010: to staff, as employees; to parents and others, where ...
Read More New report launched: Investing in early intervention
Too often children with learning disabilities and their families are unable to access the early years support and services they ...
Read More Loneliness and Parent Carer Mental Health
In addition to the Covid pandemic, there is another pandemic that has gained greater prominence lately; that of loneliness. It is ...
Read More A Parent Carer Perspective Of Loneliness
When our son was born back in 2006, we envisaged a similar parental journey to that of our two older ...
Read More Understanding atypical patterns of autism in individuals with genetic syndromes associated with intellectual disability
Dr Jo Moss, Lecturer in Psychology at the University of Surrey, opened the February CEDAR seminar by sharing a story ...
Read More Introducing Cerebra PhD Student Rory O’Sullivan
Rory O’Sullivan is a PhD student at the University of Birmingham. As part of The Cerebra Network he is leading ...
Read More So Many Books And Toys – It’s Amazing!
“Ezra has global development delay and is on the pathway to an Autism diagnosis. Ezra struggles with social, communication difficulties ...
Read More Our Toy Library Brings Fun Right To Your Door!
“Evan will be 5 in May and has been receiving toys on loan since 2018 when he was around 1 ...
Read More How Our Library Helped Joe
Joe's mum Sophie explains how our free book and toy library have improved her family's life. "Joe is 4, he's ...
Read More Something Super-Light and Super-Strong for Superstar, Henry!
Henry, from Midsomer Norton in Somerset is 9 and a ¼ although, as a massive Harry Potter fan, he will ...
Read More Emma, Joshua And The Challenges Of Epilepsy
Joshua had a stroke at birth and as a result suffered ‘devastating brain damage’. When we finally got home from ...
Read More Recommendations for Books on Autism in the Library
If I’m asked by parents which books do I think they should read to start with, I suggest one of ...
Read More Epilepsy Books in the Library
Books in the library on Epilepsy for parent carers Complex Childhood Epilepsy a Parents Handbook by Nina Solomon Published 2010 ...
Read More Introducing some of our Superhero runners
Get to know our runners and a bit more about why they chose to run for us Sam Hitchcock I’m ...
Read More Book Review: ‘Hydrocephalus: What I Wish I’d Known’ by Harry’s HAT
When you get a diagnosis, you can feel like you’re the only family going through it. How great to find ...
Read More Introducing Cerebra PhD Student Jessica Mingins
Jessica Mingins is a PhD student at Aston University, her Cerebra funded research is improving our understanding and assessment of ...
Read More Positive Family Connections – Take Part
We are inviting family carers of a child with a learning disability, autism, or both aged 8-13 years to take ...
Read More Lifestyle Interventions in Pregnancy
Most women thinking about having a baby know that they need to make lifestyle changes before and while they are ...
Read More The long road ahead for Cerebra Superhero fundraiser
On Friday 20th May 2022, PCB Radio DJ, Chris ‘Swifty’ Morgan will be cycling the whole of the A38 for ...
Read More The Be-Well Checklist
Today we are publishing the innovative Be-Well Checklist designed to help parents, carers and professionals improve the well-being of people ...
Read More Positive Family Connections
Joanna Griffin, parent carer, counselling psychologist and Assistant Professor at the University of Warwick discusses the value of co-production and ...
Read More Playing with your child for research
Watch Me Play! involves the parent watching their child play for about 20 minutes a couple of times a week. ...
Read More Property ownership and Children – recognising the financial investment of others
Introduction The legal ownership of the 'Family Home' of a Child who has received a Personal Injury award can sometimes ...
Read More Caitlin Williams – 1000 Families Study
My name is Caitlin Williams and I’m a second year PhD student at the University of Warwick. My PhD research ...
Read More Transitioning from School to Further Education
Moving from a school setting into further education is a difficult decision for any young person. However, for people with ...
Read More Helping Lucian with sleepless nights and his sensory needs
7-year-old Lucian is a happy and bubbly young boy who gets on so well with others and loves being outdoors. ...
Read More Mediterranean diet or mindfulness during pregnancy reduces by one third the risk of a low birth weight baby
A clinical trial for pregnant women at high risk of a low birth weight baby demonstrates for the first time ...
Read More Happy 20th Birthday Cerebra!
“I have many different emotions when I let it sink in that we are celebrating Cerebra’s 20th birthday. No different ...
Read More Variety, Smiles And Fun With Our Toy Library
Sarah explains how our toy library has helped her daughter Betsy to have fun and variety in her life. “Betsy ...
Read More Assistive Technology – enhancing independence for children living with brain conditions
“For people without disabilities, technology makes things easier. For people with disabilities, technology makes things possible.” IBM Training Manual, 1991. ...
Read More Prematurity
For most mothers pregnancy is a safe and straightforward process but for 1 in 5 unexpected complications can occur and ...
Read More Daniel Sutherland – Positive Family Connections
My name is Daniel Sutherland, and I am doing a PhD at the University of Warwick funded by Cerebra. My ...
Read More Cerebra will be delivering our Accessing Public Services Toolkit Workshop
We're delighted to announces that Cerebra will be delivering our Accessing Public Services Toolkit Workshop on Monday 13th December 2021. ...
Read More Educational Tribunal Appeals in Wales: Which website do I need – SENTW or ETW?
On 1 September 2021 the law about children with learning difficulties and disabilities living in Wales changed as the old special ...
Read More School And Mental Health – Survey
Our PhD student Lowri O'Donovan has put together a survey for parents of children with rare genetic conditions. Working with ...
Read More A Model For Early Years Family Intervention Supports
A model for Early Years family intervention supports for children with global developmental delay/ emerging learning disabilities in Wales: professional ...
Read More Sleeping, Playing and Learning
David is almost two years old and is a happy little boy who loves books, toy trains and going on ...
Read More Planning your Child’s Future: Transitioning from Child to Adult
Planning your Child’s Future: Transitioning from Child to Adult The days are long, but the years are short. Words that ...
Read More Watch Me Play!
Are you interested in taking part in a Watch Me Play! study? Watch Me Play! is a programme for parents ...
Read More Louise takes on Marathon Challenge for Cerebra
Louise Astill, a solicitor from CL Medilaw, a firm specialising in medical negligence and serious injuries, is gearing up to ...
Read More Back to Basics: Parent Child Relationships in Families with Children who have Typical and Atypical Development
Professor Carlo Schuengel opened his CEDAR seminar series talk by reflecting on the pandemic and what a special time it ...
Read More Teddy is Going Places with his Oxy-gem!
Teddy was born healthy and well, although he suffered with what we thought was terrible reflux. When he was a ...
Read More Cerebra awarded Association of Medical Research Charities membership
Association of Medical Research Charities (AMRC) - Cerebra Membership The Association of Medical Research Charities (AMRC) is a membership organisation ...
Read More Wales: Code of Practice on the Delivery of Autism Services
The Welsh Government has issued a Code of Practice on the Delivery of Autism Services (CoP) and accompanying supporting guidance ...
Read More Transition to Employment Toolkit for Autistic Young People
Ambitious about Autism have launched a new toolkit to support autistic young people moving into the workplace. The organisation explains ...
Read More Wales: Changes to the Transfer Timetable for Moving from the Special Educational System to the New Additional Learning Needs System
On 14 July 2021, Jeremy Miles, Minister for Education and the Welsh Language issued a written statement explaining that the ...
Read More England Publishes a New National Strategy for Autistic Children, Young People and Adults
On 21 July 2021 the government published a new national strategy for improving the lives of autistic people and their ...
Read More Extended Powers SEND Tribunal National Trial to Continue
On 20 July 2021, the Department for Education confirmed the extended powers given to the special educational needs and disability ...
Read More Institutionalising Parent-carer Blame
Disabled children and their families are one of the most severely disadvantaged groups in the UK. A major research report ...
Read More Welcome To Our Newest Recruit
We are delighted to welcome Ffion Parsons as the newest member of our team. Ffion, from Carmarthen, has joined us ...
Read More ‘Day by Day’ by Joanna Griffin – Book Review
‘Day by Day: emotional wellbeing in parents of disabled children’ If you're struggling with the emotional turmoil of being the ...
Read More Can an Education, Health and Care Plan (EHCP) help my child after a brain injury?
Can an Education, Health and Care Plan (EHCP) help my child after a brain injury? If your child has a ...
Read More A Second Chance
We recently had the pleasure of being contacted by Joey, a 16-year-old from Northern Ireland whose life was turned upside ...
Read More Try Before You Buy With Our Sensory Toy Library
Our specialist postal library contains a wide range of books for both adults and children and a selection of toys ...
Read More Pobl Trust Fund Innovation Centre Materials
Pobl Trust is the registered charity of Pobl Group – a not-for-profit based in Newport which is aiming to make ...
Read More “My cheeks get red and my brain gets scared” – learning about anxiety in children with autism
Associate Professor, Dawn Adams, began her CEDAR Seminar Series talk by highlighting her research focus on autism and anxiety and ...
Read More Cerebra Network Launch a Success
The Cerebra Network recently held a virtual event to celebrate the launch of their new dynamic network of researchers. The ...
Read More Design to Change Competition Winners
Bolt Burdon Kemp have announced the winners of their Design the Change competition. The competition, which is now in its ...
Read More Cerebra Network Launch Event
The Cerebra Network will expand upon the work of the Cerebra Centre, which was led by Professor Chris Oliver and ...
Read More Early therapeutic intervention for acquired brain injury
Many parents feel frightened and overwhelmed when they learn that their baby has sustained an irreversible brain injury. They are ...
Read More Going the Extra Mile for Cerebra!
The London Landmarks Half Marathon takes place on 1st August and we caught up with one of our superhero runners, ...
Read More Charlie Is Flavour Of The Month
Charlie Nine year old Charlie from Surrey decided to put his baking skills to the test in order to help ...
Read More YouTube Sensation Becomes Cerebra Ambassador
We are delighted to announce that YouTube sensation, Emily Nicole Roberts has become a Cerebra Ambassador. Emily, 22 from South ...
Read More Sensory Pod Chairs Project Underway Thanks To Nationwide Donation
We would like to say a huge thanks to Nationwide and particularly their team at the Rotherham branch for their ...
Read More Disabled Facilities Grants – One Family’s Story
One mum tells us why her autistic son belongs at home and how a Disabled Facilities Grant made it possible. ...
Read More The Hidden Face of Autism
Wenyuan Liu Professor Mandy opened the seminar with some general thoughts about autism, particularly the history and changes in how ...
Read More Having to be your child’s voice when you don’t know what questions to ask
Enable Law take a look at having to be your child's voice when you don't know what questions to ask. ...
Read More Sleep Advice: Chronotherapy and Phased Advancement
Sarah got in touch with our Sleep Service at a point when she felt that her family had run out ...
Read More Wales: Additional Learning Needs Code and Regulations Approved
The SEN/ALN forms passed a new milestone when the ALN Code and regulations were approved by the Senedd on 23 March. ...
Read More Our Knowledge Transfer Project (Mental Health) Identified As Good Practice
Genetic Alliance UK has published the final report on the Cross Party Group on Rare, Genetic & Undiagnosed Conditions highlighting ...
Read More Law Students Investigate Social Needs Assessments
The Cerebra Legal Entitlements and Problem-Solving (LEaP) project is innovative and helps families of children with brain conditions cope with ...
Read More A History of Controversies over the treatment of autism with behavioural therapies
Nikita Hayden Milana Aronov opened her CEDAR Seminar Series talk by highlighting how relatively under-explored autism is in the humanities. ...
Read More A unique set of wheels for 3-year-old Henry
A bike trailer created by our Innovation Centre at the University of Wales Trinity Saint David (UWTSD) has given a young ...
Read More Preventing Pregnancy Complications #IWD21
At the University of Barcelona we meet two Elisenda’s whose work tries to identify deviations in foetal brain development as ...
Read More Championing Mental Health #IWD21
Research shows that children with rare genetic disorders often struggle with their mental health. Yet families have trouble finding helpful ...
Read More Cerebra Women Making A Difference #IWD21
As part of our International Women’s Day campaign we are catching up with some of the women researchers that are ...
Read More Growing up with CP – Becoming a Youtube Sensation!
Growing up, Emily never felt as though any of the people she saw in the media represented her and knew ...
Read More This Is Our Family
Earlier this year Sky Atlantic broadcast the documentary ‘This Is Our Family’ which took three years to film and followed ...
Read More LEaP Project Recognises Exceptional Contribution Of Students
The Caroline Gooding Memorial Lecture is an annual event in memory of Caroline Gooding’s pivotal role in conceptualising a rights-based ...
Read More COVID-19 Guide for Carers and Family Supporting Adults and Children with Learning Disabilities
The Social Care Institute for Excellence has produced a new guide to help family members and carers living with and ...
Read More Libby is going places with her new Walker!
We wanted to share some wonderful footage of Libby receiving a surprise gift from our Innovation Centre! At just 18 ...
Read More Learning at Home with our Library
Cerebra’s postal library service is still open during the lockdown. While the kids are at home and you are home ...
Read More Practical Tips for Effectively Accessing Public Services for your Disabled Child
Unfortunately many families struggle to access the education, social and health services for their children that they are legally entitled ...
Read More Public Health Wales looking for Two Patient and Public Involvement Members
Public Health Wales are looking for two Patient and Public Involvement members for a research project briefly outlined below: Public ...
Read More Clinical Criteria For Diagnosing Autism Inadequate For People With Genetic Conditions, Research Suggests
People with certain genetic conditions are likely to have significant symptoms of autism, even if they do not meet all ...
Read More Christmas Sleep Tips
During the Christmas break the change in routine and dark, colder nights can often make sleep difficult. It can be ...
Read More An Update On Judith And Rose’s Sleep Story
Earlier this year Judith got in touch to tell us how our Sleep Service had given her the advice and ...
Read More Our Fundraisers And Supporters Rise To The Challenge
There's no doubt that we would be unable to continue our vital work to help families discover a better life ...
Read More Update on the powers of a property and financial affairs Deputy
A recent case in the Court of Protection[i] has given property and financial affairs Deputies clarity about the extent of ...
Read More Our Research Helps Families To Get A Good Night’s Sleep
We know that sleep affects every single aspect of our waking lives – our mood, behaviour, physical and mental well-being, ...
Read More Barney’s Christmas-a-thon
Seven year old Barney is doing something amazing this Christmas – a Christmas-a-thon! What’s a Christmas-a-thon you ask? During December, ...
Read More Brain injury at birth guide for parents
Being a new parent involves a huge learning curve but when you are told something is wrong with your baby ...
Read More England: Updated Guidance for Opening of Special Schools
The guidance for the full opening of special schools and other specialist settings was updated on 20 November. The update ...
Read More Useful Resources from the Council for Disabled Children
Amongst the many useful resources parents of disabled children can find on the Council for Disabled Children’s (CDC) website we ...
Read More Wales: Update on the Additional Learning Needs System
The Welsh Government issued the following update below on 25 November: The Senedd yesterday approved the ‘Draft: Additional Learning Needs ...
Read More Our new look Oxygems are ready to roll!
Cerebra’s Oxygems, designed and built by our Innovation Centre, have made a big difference to the lives of children all ...
Read More A Fond Farewell To Anthea
We've said a fond farewell to one of Cerebra's longest serving members of staff – Anthea Wright who retired last ...
Read More Embracing Complexity Through Art And Science
Dr Sam Chawner from Cardiff University has teamed up with Phenotypica, an art and science initiative by scientist Ben Murray ...
Read More Mental Capacity – Trustee, Attorney, Appointee or Deputy?
If you're the parent or guardian of a child that is expected to lack capacity as an adult, it can ...
Read More Useful Children and Young People Mental Health Resources
Navigating the children and young people’s mental health system can be very daunting but the following resources could be very ...
Read More Mental Health Support For You And Your Family
Whether it’s being able to spot the signs of anxiety and pain in a child with complex needs or looking ...
Read More Books on Mental Health in our Library
Mental Health Library books for Adults A Practical Guide to Mental Health Problems in Children with Autism Spectrum Disorder by ...
Read More Improving Mental Health Support in Schools for Children With Rare Conditions
Lowri is our Knowledge Transfer Project Mental Health Research Associate. She explains about a visual map that was created following ...
Read More England: New and Updated Government Covid-19 Guidance
Since the start of the epidemic the Government has produced a significant amount of guidance for schools, social services and ...
Read More Wales: Consultation on the Delivery of Autism Services
The Welsh Government has launched a consultation on a code of practice dedicated to the delivery of autism services in ...
Read More England: New and Updated Government Covid-19 Guidance
Since the start of the epidemic the Government has produced a significant amount of guidance for schools, social services and ...
Read More England: New and Updated Government Covid-19 Guidance
Since the start of the epidemic the Government has produced a significant amount of guidance for schools, social services and ...
Read More Wales: ALN Code Delayed
As part of the Welsh Government’s ongoing special educational needs reform which resulted in the passing of the Additional Learning ...
Read More Wales: School Transport Review Extended to 0-4 Year-Olds and Mileage Thresholds
Local authorities in Wales must make free travel arrangements for eligible children of compulsory school age, that is to say ...
Read More Top 5 Tips to Help you Become a Savvy Stepper
We recently launched our new campaign where we're asking you to Step Up for Cerebra. As part of the challenge, ...
Read More Loneliness When Parenting a Child with Complex Needs
Mum Jessica Barker explains how her family experience led her to develop a friend finding app for parents and carers ...
Read More England: New and Updated Government Covid-19 Guidance
Since the start of the epidemic the Government has produced a significant amount of guidance for schools, social services and ...
Read More Mental Health and Wellbeing Toolkit for Primary Schools
As schools prepare for children and young people to return in September, supporting and prioritising mental health and wellbeing will ...
Read More The Lessons We’ve Learned From Covid
Our Legal Rights Service provides families of children with brain conditions with help when facing difficulties accessing support services they ...
Read More Two Covid-19 Research Projects Looking For Families To Take Part
Two organisations are looking for your opinions about support during lockdown. The National Children’s Bureau are looking for families, including ...
Read More Keeping Children With Brain Conditions Safe
We are working on a special project to keep children safe as schools get set to re-open. Our Swansea based ...
Read More England: Additional Transport Guidance to Educational settings from the Autumn Term
The Government published additional guidance on 11 August regarding transport to schools and other educational settings which comes into force ...
Read More England: New and Updated Government Covid-19 Guidance
Since the start of the epidemic the Government has produced a significant amount of guidance for schools, social services and ...
Read More Learning Your Child Has Cerebral Palsy – What Next?
Through years of representing inspirational children with brain injuries and working with their amazing families, I understand that in the ...
Read More Appeal To Parent Support Groups To Participate In Our Children’s Services Assessment Survey
Cerebra’s Legal Entitlement and Problem-solving Project (LEaP) is carrying out a research project with Professor Luke Clements, Cerebra Professor of ...
Read More Getting Back To Normal At Our Library
We are pleased to announce that our postal book library has reopened. As usual, you can borrow two books at ...
Read More Unlawful restrictions on the rights of disabled children with autism to social care needs assessments
Autism is classed as a disability and all children with disabilities have a right to an assessment of their needs. ...
Read More 41 Local Authorities are unlawfully discriminating against autistic children
According to a report published today by Disability Law Service, Leeds University, Cerebra and the BBC, at least 41 Councils ...
Read More Child Mental Health: Resources To Help Young People
The Coronavirus pandemic has caused significant and sudden change to our daily lives. Statistics show that this has caused a ...
Read More Autism: A Lack of Social Care Support
We recently published a post asking families in the Yorkshire area to get in contact if their child with autism ...
Read More Welsh Government Seeks Your Views On How Wales Should Develop Post-Covid
The Welsh Government has launched a national conversation with the people of Wales on how it “should support future post-Covid ...
Read More Ice-cream Delight For Carmela
Enjoying an ice cream on a hot summer day is something most of us take for granted. For six year ...
Read More Department for Education to reintroduce full Education, Health and Care Plan Support
In May, the Government implemented temporary law changes regarding Education, Health and Care Plans (EHCP) as a result of the ...
Read More SEN Tribunal in Wales issues directions on electronic submission of paperwork
The Special Educational Needs Tribunal for Wales (SENTW) is continuing to hear cases during the coronavirus pandemic but in virtual ...
Read More Follow-up: Your experiences of Obtaining a Parent Carer Needs Assessment
Last month we published an article where our LEaP Project asked you for your personal experiences of obtaining a Parent ...
Read More Our Legal Rights Service Helps Family With Parent Carer Needs Assessment
Elena got in touch with our Legal Rights Service after her local authority (LA) repeatedly refused to undertake a standalone ...
Read More Cerebra Funding for The Cerebra Network for Neurodevelopmental Disorders
We are delighted to announce £829,000 of funding for the Cerebra Network for Neurodevelopmental Disorders. Tracy Elliott, Head of Research ...
Read More Autism and Lack of Social Care Support – Can You Help?
Our Legal Entitlements and Problem Solving Project (LEaP) is looking for a family in the Yorkshire area to be interviewed ...
Read More Bedtime Settling and Night Time Waking
Cathy and her family were all struggling with the impact of her son's inability to settle at bedtime and his ...
Read More Cerebra’s Innovation Centre supplies child friendly visors to schools
Lock down has meant that our Innovation Centre staff have been unable to work on their regular projects so they ...
Read More Update on Schools in England and Wales
The Government has removed plans for primary school children in England to return to school before the end of the ...
Read More Cerebra Family Research Group End Of Grant Report
The Cerebra Family Research Group has released its End of Grant Report outlining the focus of their work well as ...
Read More Delivering Legal Rights End of Grant Report
The School of Law at the University of Leeds has published its end of grant report summarising the achievements of ...
Read More How a Brain Injury can Affect your Child’s Education
Laxmi Patel, Partner and Head of Education at Boyes Turner takes a look at how a brain injury can affect ...
Read More Guidance in England for Returning to School
The following information relates to England only. It does not apply to Wales. In England, the Prime Minister has announced ...
Read More School Friends Hit the Road in Aid of Families and Carers
It was around five years ago when we first met Enna Thea and her mum, Catherine when they contacted our ...
Read More Open Letter To Supermarkets
We know that supermarkets are doing their best to keep the public safe during this really difficult time. But we’re ...
Read More Double Success For Deborah
Kaileigh, who is one of our Sleep Practitioners recently helped Deborah and her daughter Olivia who was experiencing anxiety at ...
Read More 500 Face Visors for Care Homes
Our Innovation Centre team have been pulling out all the stops to help support frontline workers during the Coronavirus outbreak. ...
Read More Mental Health Awareness Week – Kindness Matters
Samuel Turner is a young man with a passion for supporting Cerebra. His achievements are all the more remarkable as ...
Read More Lowri on Mental Health Awareness Week
This week we celebrate Mental Health Awareness week, the theme of which this year, is Kindness. What is Kindness? Kindness ...
Read More Parent Carers Needs Assessments
Our Legal Entitlements and Problem-Solving (LEaP) Project has received a request from a parent explaining that her local authority has ...
Read More ‘Vulnerable’ Does Not Mean ‘at Risk of Harm’
Since the start of the Coronavirus pandemic, we have heard people who are more likely to be ‘at risk’ by ...
Read More Guidance for Councils and Care Providers During the Coronavirus Crisis
Back in March, the Local Government and Social Care Ombudsman (LGSCO) suspended all casework activity that demands information from, or ...
Read More Legal Team Shortlisted for Prestigious Award
Supported by the Attorney General, the LawWorks awards celebrate the best pro bono activities undertaken by law students and law ...
Read More One Family’s Experience of a ‘Child in Need’ Assessment
In England and Wales, local authorities are under a duty to assess the social care needs of children who meet ...
Read More Children’s Services Duties ‘Relaxed’ in England but not in Wales
England A new set of regulations came into force in England on Friday 23 April which have controversially relaxed some ...
Read More Face Mask Update From CIC
"Hi Everyone, I hope you are all well and still coping with the lockdown! I will freely admit, it has ...
Read More Welsh Government Issues New Guidance
On 21 April the Welsh Government issued new guidance on how children’s services should operate during the Covid-19 outbreak. The ...
Read More Direct Payments and Prepaid Cards Success for LEaP Project
Sophie, our LEaP Project co-ordinator, explains how we helped families with disabled children in one particular English local authority. The ...
Read More Do Something Fun and out of the Ordinary – Join the 2.6 Challenge!
Cerebra, like many charities across the country, have had to put a lot of fundraising plans on hold and with ...
Read More New Items Available from our BorrowBox Library
As we aren’t able to send books out at the moment, we have just added lots of new titles to ...
Read More Disabled Facilities Grant Ruling
In a judgment released on 2 April 2020, the High Court ruled that when processing an application for a disabled ...
Read More Cerebra funded research at the University of Birmingham
The Cerebra Centre for Neurodevelopmental Disorders (CCND) is headed by Professor Chris Oliver and is based in the School of ...
Read More Let’s get Artistic Together!
It’s a very difficult and uncertain time at the moment. The Coronavirus pandemic has effected all of us in some ...
Read More How our Sleep Service helps – Judith’s story
Our family “Our fifteen year old daughter, Rose, has an underdeveloped cerebellum. This affects her muscle coordination, which in turn ...
Read More Legal Handbook for Families Launched
Legal Action Group has published its 3rd edition of Disabled Children: A legal handbook and is currently offering a 20% ...
Read More Change in Lock Down Exercise Guidance for People With Health Conditions
On 23 March 2020 the Prime Minister announced that all citizens were only allowed to leave where they were living ...
Read More CIC Helps Create Protective Equipment for NHS Staff
Hi Cerebra family! I do hope you have all been coping well during lock down. I can tell you, in ...
Read More We Back Campaign for Coronavirus Act Review
The Coronavirus Act 2020 worryingly relieves local authorities in England and Wales of their duties to provide crucial care and ...
Read More Factsheet: Complaints, Public Bodies and Government Guidance
The law that parents of disabled children and their supporters may have to deal with can be very complicated. We ...
Read More Sources of Free e-books and audiobooks
Cerebra’s digital library focuses on neurological conditions, but there are plenty of other ways to get free e-books and audiobooks ...
Read More Coronavirus Act: an Overview for England and Wales
By now you will probably be aware of the Coronavirus Act 2020 (The Act) and its potential impact on social ...
Read More Changes to our Library Service
Sadly, due to the current situation we have had to suspend the book and toy library for the time-being. We ...
Read More Lockdown Lowdown from CIC
Okay, so here I go with my first ever blog - and what a time to start! So, we all ...
Read More Getting school transport for your disabled child
In October 2019, Margaret contacted our LEaP Project to thank us for the information within our to School Transport Guide ...
Read More Cerebra and COVID-19
Despite the disruption caused by the current COVID-19 pandemic we would like to reassure you that Cerebra is still operational ...
Read More Personal Independence Payments (PIP) Signposting
Disability Living Allowance for people aged 16-64 has been replaced by Personal Independence Payments (PIP). This means that if your ...
Read More Helping Layla get a good night’s sleep
Because of her condition, Layla is also unable to communicate so she can’t explain how she is feeling or tell ...
Read More An ‘Awesome and Wobbly’ time in aid of Cerebra
On Tuesday 3 March, Leigh Day organised ‘Awesome and Wobbly’ - an incredible evening of music and comedy, all in ...
Read More New campaign to recruit Everyday Superheroes
More than 500,000 children in the UK have a brain condition, such as autism, and fight challenges every day when ...
Read More New books in our library
We have received £1000 to spend on specialist books for our postal lending library. This was kindly donated to us ...
Read More Join our Project Advisory Group
Join our Project Advisory Group to help us improve mental health services for children with rare genetic developmental conditions. Background ...
Read More Great Feedback for our CIC Fish Tank
Our Innovation Centre (CIC) were extremely busy before Christmas getting some of their sensory fish tanks out to lucky families. ...
Read More New Mythbusters Available Now
We have a a new range of factsheets called mythbusters available to download now. These aim to dispel common misconceptions ...
Read More Rockadove Help us with Video Campaign
We are delighted to have been named the winners of the inaugural Third Sector prize which is a partnership between ...
Read More An Introduction to Sophie and Legal Entitlements
Sophie after running the Cardiff Half Marathon Hi- I’m Sophie and I’m the Legal Entitlements and Problem Solving (LEaP) Project ...
Read More Lisa on Becoming a Family Research Ambassador
Lisa is one of our Family Research Ambassadors. She explains why she got involved and what she does as part ...
Read More Books in the Library About Giving Birth to a Child with a Disability
General books L6316 Celebrating and Caring for your Baby with Special Needs: uplifting tips and advice to help you through ...
Read More Born too soon: Claire’s Story
We were going home to enjoy Christmas. I couldn't have imagined for a second what was about to happen... Claire ...
Read More Implementation of the Welsh SEN/ALN Reform Postponed
Kirsty Williams, Minister for Education, has issued a written statement postponing the roll out of the new special educational needs ...
Read More Legal Entitlements and Problem Solving Conference
We are holding a conference on "Legal Entitlements and Problem Solving for Disabled People, their Families and Carers". 19 November ...
Read More Local Government Ombudsman Report on SEND in England
In a new report released on 04 October and called Not going to plan? – Education, Health and Care plans ...
Read More Joshua’s Transition Part 4 – Direct Payments
This is part 4 in a series of articles that Emma has written for us. You can also read her ...
Read More Home to School Travel and Transport Guidance Consultation -England
Cerebra’s Legal Entitlement and Problem-solving (LEaP) Project, led by Luke Clements the Cerebra Professor of Law and Social Justice at ...
Read More Wales International Film Festival
Samuel Turner is a young man with a passion – for supporting us and for making films. He is thrilled ...
Read More Ruling the World!
Ross Head from our Innovation Centre tells us of the team’s latest design to help children ‘rule’ the world! Whilst ...
Read More What’s your Experience of Community Physical Participation?
Hello. My name is Karen Visser. I am a physiotherapist, PhD student and Senior Lecturer at Cardiff University. You can ...
Read More School Transport for Nat
Our Legal Entitlements and Problem-solving (LEaP) Project helped Nat get transport to school and as a thank you he has ...
Read More LEaP Project Helps Family to get a Continence Assessment at Home
Earlier this year, our Legal Entitlements and Problem-Solving (LEaP) Project supported a family who had been told that their son’s ...
Read More Building a Better Bedtime Routine
My daughter Avleen was born prematurely at 28 weeks but is now five years old. She was diagnosed with Autism ...
Read More Our Innovation Centre help Harry to throw a ball for his dog
Cerebra Innovation Centre, with help from ATiC – the University’s integrated research centre – developed the tennis ball shooter for ...
Read More New books in the library
Check out the new books we have in our library. If you are not already a member you can borrow ...
Read More A Helmet for Imogen
The new helmet being developed by CIC and UWTSD has been made to measure by using high tech equipment to ...
Read More School, bullying and mental health
School. Some of us fondly remember our days in school as ‘some of the best days of our lives’. School ...
Read More Accessing Public Services in Scotland Toolkit Workshop
Scots law provides powerful rights to education and support from other services, but this alone isn't enough. The law can ...
Read More The Embracing Complexity Coalition launches
We have joined leading UK Neurodevelopmental and Mental Health Charities to Launch The ‘Embracing Complexity Coalition’ The Embracing Complexity Coalition ...
Read More SEND funding in England: the Government needs your views!
Last week the Department for Education (DfE) in England made a call for evidence about SEND funding. As many of ...
Read More CIC develop new sensory fish tank
CIC have developed a great new sensory fish tank. Fish are a great addition to a sensory experience, but are susceptible ...
Read More The long-term effects of unreliable, inconsistent support in CAMHS
Unreliable and inconsistent support from CAMHS "When we discuss the high staff turnover, lack of reliable support, and other issues ...
Read More Specsavers donates almost £20,000
Staff at Specsavers opticians have helped donate nearly £20,000 to us, following a year of fundraising. 39 Specsavers stores across ...
Read More Joshua’s Transition: Part 3
Emma tells us about the challenges of transitioning from child to adult services. You can read part one here and part ...
Read More We won! Innovation Centre success
The Cerebra Innovation Centre (CIC), a partnership between Cerebra and the University of Wales Trinity Saint David (UWTSD), has won ...
Read More Have you been told that your child is too young to have a continence assessment?
Has your local continence team told you that your child isn’t old enough to have a continence assessment? Our new ...
Read More Christine Bunting takes on her biggest challenge yet as she prepares to trek to Mount Everest Base Camp
Christine Bunting, a lawyer from specialist Court of Protection law firm Hyphen Law, is about to take on the biggest ...
Read More Amelie gets transport to school, with help from our LEaP Project
Karen, who lives in Surrey, contacted our LEaP Project in January for help with a school transport problem. Her daughter, ...
Read More Cerebra Innovation Centre shortlisted for a St David Award
The Cerebra Innovation Centre (CIC), a partnership between Cerebra and the University of Wales Trinity Saint David (UWTSD), has been ...
Read More Joshua’s Transition: Part 2
Emma tells us about the challenges of transitioning from child to adult services. You can read part one here. It ...
Read More Meet our new Sleep Practitioners
We're thrilled to introduce you to the two newest members of our sleep team, Carwyn Tywyn and Claire Cox. Carwyn ...
Read More Has your child been refused a continence assessment at home?
Has your local continence team told you that they can only assess your child at a school/hospital, rather than at ...
Read More Designing a better future for children with brain conditions with help from South Wales Freemasons
Our Innovation Centre and the work they do to help children take part in and enjoy life alongside their ...
Read More Samuel discovers freedom with his Oxy-gem
Samuel's mum Joceline recently contacted our Innovation Centre. As a member of a parent group on Facebook, she had seen ...
Read More Can you guess our most popular post from 2018?
We've crunched the numbers, we've checked them twice and now we can reveal our most popular posts from 2018. 5. ...
Read More Cerebra to benefit from Co-op Community Fund
Vanessa with Dylan, Ryan and Taran This year we have been chosen to benefit from the Co-op Local Community Fund. ...
Read More Cerebra and Cardiff University collaborate to advance support available to families
Hello, I’m Lowri and I’m really happy to be joining Cerebra to work on an exciting and new Welsh Government ...
Read More Joshua’s Transition Part 1
Emma tells us about the period of transition that her son, 17 year-old Joshua is about to face and the ...
Read More Imogen draws our Christmas raffle winners
We held our Christmas raffle draw on Wednesday 19th December and had a very special guest do the honours. Seven ...
Read More The twelve days of Christmas with our Innovation Centre
Christmas is a time for joy and for making dreams come true. At our Innovation Centre we believe that all children ...
Read More Is your child getting unsuitable continence products?
Have you been told that your child can’t have the type of continence product that she needs? Are you ...
Read More That dog has got a beard!
We've got a great new children's book in our library that explores the consequences of being different. 'That dog has got ...
Read More Accessing Public Services Workshops
Are you interested in hosting a workshop to help families access services for their disabled children? We are taking bookings ...
Read More Making dreams come true this #GivingTuesday
#Giving Tuesday is on November 27th and this year we’re celebrating the amazing work our Innovation Centre do to help ...
Read More Soaring high
Our Innovation Centre are proud to make products that help disabled children to enjoy and experience life alongside their ...
Read More CIC come up with clever 3D printed solution
The Cerebra Innovation Centre (CIC) were recently asked for help with a small project, which really emphasises the usefulness of ...
Read More Book reviews
Our librarian Jan reviews two new books you can borrow from our postal lending library. ‘There are Things I ...
Read More An introduction to us
My name is Emma and I am married to Michael – it is our 23rd wedding anniversary today – and ...
Read More Cerebra surfboard goes global
The team at CIC designed the surfboard in partnership with Roger Cooper for children with limited mobility and brain conditions. It ...
Read More Alex rides the waves
The team at the Cerebra Innovation Centre are dedicated to designing and making bespoke products that enrich a child’s life, ...
Read More Special Educational Needs reform in Wales
The special educational needs (SEN) reforms in Wales are now a little under a year away from their introduction. The ...
Read More Our LEaP Project helps change the Welsh Government’s guidance on continence products
Have you been told that you can’t have more than 4 continence products a day, even if your child needs ...
Read More Improving the mental health of children with brain conditions
We are launching a new project to help families of children with brain conditions access timely and appropriate mental ...
Read More What can I do if my child needs me to be there in order for them to sleep?
For some children, falling asleep without an adult with them seems impossible. Perhaps your child is used to you ...
Read More Caldicot girl with cerebral palsy climbs South Wales’ highest peak
Six year old Imogen Ashwell-Lewis, who was diagnosed with cerebral palsy at birth, reached the top of South Wales’ highest ...
Read More Joint Statement on PenCRU by Cerebra and University of Exeter Medical School
The following joint statement concerns termination of funding from the charity Cerebra for the Academic Chair and PenCRU childhood disability ...
Read More Support in the Early Years Survey
We are working with the Family Research Group at the University of Warwick, as well as with Mencap, Ambitious about ...
Read More Get a good night’s sleep with help from our library
Join our librarian Jan (and teddy) as she talks through the different books and sensory equipment we have in our ...
Read More Partnership pioneers better support services
We have forged a partnership with Cardiff University to improve services for families of children with debilitating brain disorders. The ...
Read More Understanding and reducing sleep disorders in children with development delay
The Sleep Project at the Cerebra Centre for Neurological Disorders at Birmingham University is studying sleep in children with neurological conditions. ...
Read More Difficulty settling at night
One of our Sleep Practitioners recently helped a family who were struggling to get their daughter to bed, and to ...
Read More Object of comfort helps Poppy sleep
Mum Rachel contacted our Sleep Service to get some advice about daughter Poppy who was having a number of sleep ...
Read More My child just won’t go to sleep
This article takes a look at what you can do if your child just won't go to sleep. It's taken ...
Read More Cara smashes duathlon challenge
One of our Ambassadors, Cara Readle, recently completed a duathlon and raised over £500 for Cerebra! This was a particular ...
Read More Innovation Centre’s spinning pod a big hit with Curtis
Louise recently contacted our Innovation Centre after seeing a post on our Facebook page about the spinning pod chairs that ...
Read More Engage to Change
We're delighted to welcome Kyle Davies to our team following his Engage to Change placement with us. We were ...
Read More We have a new Chair of Trustees
We are pleased to announce that Sean Taggart will be joining the Board of Trustees on the 1st of ...
Read More Jonas enjoys sensory toys from our library
Jonas' parents recently contacted our postal lending library to borrow some sensory lights. Mum Jolanta and dad Andrej told us ...
Read More Summer Reading
Are you looking for ways to entertain the children this summer? Did you know that you can borrow children's books ...
Read More Handy tips for summer holiday sleep
During the summer holidays the change in routine and light, warmer nights can often make sleep difficult. It can be ...
Read More Travel insurance covering children with disabilities
At this time of year, one of the questions coming in to our helpline is about travel insurance that ...
Read More Cara to take on duathlon challenge
Swansea born actress Cara Readle, famous for her role in ‘The Story of Tracy Beaker’, will be taking on a ...
Read More Epilepsy and getting a better night’s sleep
Louise recently contacted our Sleep Service for some advice to help 9-year-old Jonah get a good night’s sleep. Jonah has ...
Read More Delivering legal rights through practical problem solving
In this article we explain our Legal Entitlements and Problem-Solving (LEaP) Project with the Centre for Law and Social Justice, the ...
Read More The accessibility of Disabled Facilities Grant application forms
A survey has found that about half of local authorities in England do not make application forms freely available ...
Read More Disability related expenditure and pets care costs
A survey has found that many disabled people are unable to afford to keep a pet dog or cat ...
Read More Knowledge Transfer Partnership success!
We are delighted to announce that we have been successful in our Knowledge Transfer Partnership (KTP) bid with the Institute ...
Read More Effective interventions for long term change
At the Cerebra Centre for Neurodevelopmental Conditions, University of Birmingham, the aim is to identify the causes of the most pressing ...
Read More Our innovation team design the Boccia ramp of the future
The CIC team have been working hard to create a high tech Boccia Ramp. Boccia is a ball sport, similar to ...
Read More Ask, Listen, Do
Do you care for a child or young person with a learning disability, autism or both? Have you ever raised ...
Read More Innovation Centre help Livia gain independence
Mum Alanah recently approached our Innovation Centre with a challenge that would help maintain her daughter's independence while keeping the ...
Read More Six year-old Jake-Junior to run for Cerebra
When Jake -Junior cheered his dad from the side-lines as he completed the London Marathon, there was only one thing ...
Read More BorrowBox is here!
We are so pleased to offer a new service in our library. You can now borrow ebooks and audiobooks from ...
Read More Arctic Ride Alaska!
This summer Cerebra Ambassador Gordon Stuart will attempt his latest epic charity motorbike challenge. He will have just 12 days ...
Read More Tiny hats for tiny babies
One of our dedicated fundraisers, Sam Elliott, has just knitted 39 baby hats for premature babies on the Neonatal Ward ...
Read More Independence for Myles with our Oxygem
Our creative team of designers at our Innovation Centre and our Oxygem recently helped Myles to become more independent. Myles' mum ...
Read More Preventing neonatal brain injury and childhood disability
The main objective of the Cerebra Perinatal Research Centre at the University of Leeds is to make a difference in ...
Read More Parents, researchers and charities join forces to create new resource for parents of children with learning disabilities.
The University of Warwick, Mencap, Cerebra, and the Challenging Behaviour Foundation have teamed up with parents of children with learning ...
Read More Team Imogen smash the Swansea triathlon
The 2018 UWTSD Swansea Triathlon has come and gone for another year, but for Team Imogen this has been an ...
Read More How to look after yourself
We know from research that parents of children with a learning disability can be twice as likely to experience high ...
Read More Autism and mental health – one family’s journey
"My daughter, Mair, is autistic with severe and enduring mental health difficulties. She was diagnosed with autism 6 years ago ...
Read More Working to improve children’s mental health
We are working on a joint funding bid with the Institute of Psychological Medicine and Clinical Neurosciences, Cardiff University for ...
Read More Samuel cheers buddy to marathon glory!
On Sunday 22nd April, American Dustin Erhardt ran the London Marathon for his buddy Samuel and to raise money us. ...
Read More Running, cycling and donuts!
The Cerebra Innovation Team are officially 5 weeks away from competing in the Swansea Triathlon 2018, with Captain Imogen to ...
Read More Understanding and Reducing Sleep Disorders in Children with Developmental Delay
Dr Caroline Richards and Professor Chris Oliver from the Cerebra Centre for Neurodevelopmental Disorders talk about the Sleep Project which ...
Read More Accessing Public Services Workshops for Professionals
Following on from the huge success of our Accessing Public Services Workshops, we are launching sessions specifically for professionals. The ...
Read More Captain Imogen and her brave triathlon crew!
The Cerebra Innovation Centre design team will be embarking on a triathlon adventure this year with their very own triathlon ...
Read More Improving the well-being of young children with learning disabilities: A Parent’s Guide
We're looking for people to take a look at a brand new booklet on improving the well-being of young children ...
Read More New Books on Autism in the Library
We have had a lot of requests to borrow books explaining autism recently, so we have purchased some brand ...
Read More Countdown to Marathon Glory!
American Dustin Erhardt is making his final preparations for this year's London Marathon on 22nd April. Everyone at Cerebra will ...
Read More Delivering legal rights through practical problem-solving
In this article we take a look at our Legal Entitlements and Problem-Solving (LEaP) Project - why we started it, ...
Read More Fetal Medicine Barcelona – University of Barcelona
Why our research is important for families? We are a research group focused on Fetal Medicine. Our main goal over ...
Read More Ollie’s Story
We are extremely excited to have been named Specsavers' charity of the year for Wales this year. As part of ...
Read More Imogen’s Story
We are extremely excited to have been named Specsavers' charity of the year for Wales this year. As part of ...
Read More Ryan’s story
We are extremely excited to have been named Specsavers' charity of the year for Wales this year. As part of ...
Read More Specsavers Name Cerebra as their Charity of the Year for Wales
Specsavers has donated £10,000 to Cerebra to mark the start of a year-long fundraising partnership. The optician's 39 stores across ...
Read More Why Our Research is Important – Cerebra Family Research Group
Centre for Educational Development, Appraisal and Research (CEDAR) University of Warwick Cerebra Family Research Group “Strengthening families” Why our research ...
Read More Samuel is our Star Volunteer!
In 2017 we welcomed Samuel Turner to team Cerebra as a volunteer and Samuel, his family and friend Angel Jolly ...
Read More New Toys for Our Postal Lending Library
We recently received some funding from Children in Need to purchase some new toys for our Postal Lending Library. Check ...
Read More Dustin to Run London Marathon for Cerebra and his Buddy
We're very excited to welcome Dustin Erhardt on to team Cerebra for the London Marathon 2018! Dustin's story of how ...
Read More Our LEaP project helps Rhiannon get the continence supplies she needs
Our LEaP Project helps Rhiannon get the continence supplies she needs and our template letter could help you to write ...
Read More Birmingham Experts Launch Pioneering Autism Research
Leading researchers from Birmingham are today (25th October 2017) launching a major, new UK study into autism and mental health ...
Read More Cerebra Research Support Network – Help us make a difference
We are looking for people with lived family experience of childhood brain conditions to join our Research Support Network. Can you ...
Read More Books on ADHD in the library
Check out the books on ADHD that you can borrow from our postal lending library for free. For parents ...
Read More My Experience of Applied Behavioural Analysis
Razwana Mushtaq, whose 5 year old daughter has autism, discusses her experience of getting a diagnosis for her daughter, recent ...
Read More Support for Potocki-Lupski Syndrome
Mum Lisa, who's son Kyle has Potocki-Lupski Syndrome, tells us their story. "Kyle was born by natural birth on June ...
Read More The Arctic Rider Takes on New Alaska Challenge
When Cerebra Ambassador Gordon Stuart first started his Arctic Rider project, he couldn't have imagined the distances he would cover and the ...
Read More Team Cerebra at the Superhero Series!
On Saturday 19th August two very special Superheroes joined team Cerebra for the first ever Superhero Triathlon at Dorney Lake, ...
Read More Rhys and Anthony Take on Superhero Triathlon
When Rhys watched his sister take part in her first sports day, he wanted nothing more than to join in. ...
Read More Josh Nurse Becomes an Ambassador
Joshua Nurse from Pontiets, Carmarthenshire is celebrating his 16th birthday by becoming an Ambassador for us and drawing the winning tickets ...
Read More Disabled Facilities Grants
The school of law team at the University of Leeds Our student researchers at the School of Law, University of ...
Read More Social Care Guides – England and Wales
One of the results of devolution is that in a number of areas of the law England and Wales are ...
Read More SEN Reforms in England and Wales
In England, the special educational needs (SEN) reforms introduced in September 2014 continue to be rolled out. Although all SEN ...
Read More Innovation Centre Test New Surf Boards
Our Innovation Centre has been doing some pioneering work with surfing equipment for disabled children over the past couple of years ...
Read More Alex Completes 60 Mile Trek
We would like to say a huge well done to Alex Elsaesser who recently walked through the night to complete ...
Read More Anne and Brian Make Fantastic Donation
The story of one little boy inspired Anne Pearce and her husband Brian to donate an incredible £5,000 to Cerebra! ...
Read More Life online for young people with SEN
Dawn Cavanagh, whose teenage son has autism, considers the benefits and challenges of life online for young people with special ...
Read More New books in our library
In recent months the library has had less money to buy new books and it's been hard to choose which ...
Read More Poppy to Take on Second Triathlon Challenge
Rob and Poppy Last year, eleven year old Poppy Jones realised her dream of competing in the Cardiff Triathlon. This ...
Read More Improving early intervention for children with autism
Zarbanoo Rajput BA (Hons), mum to a 15 year old with autism and an active member of ABAAccess4all parental campaign ...
Read More 1000 Families Study – Age Range Extended
Are you the mother, father, or caregiver of a child aged between 4 and 15 years, 11 months who has ...
Read More Sleep Walking to Success
On Saturday 6th May we held our second walk to the top of Pen-y-Fan in the Brecon Beacons to raise ...
Read More An End to Sleepless Nights
Our Sleep Service gives support to families when their child is having sleep difficulties. Sleep Practitioner Catherine Stone recently helped ...
Read More Help with night waking
Mum Tammy was struggling to cope with her daughter's night waking. Our Sleep Practitioner Claire Varey describes how she gave ...
Read More Cameron Gets Around on His New Scooot Seat
Louise French recently got in touch with us after she saw a Scooot Seat in action and knew it would ...
Read More Learning disabilities: Identifying and managing mental health problems
The role of the National Institute for Health and Care Excellence (NICE) is to improve outcomes for people using the ...
Read More Sleep and Head Banging
Head banging is just one of the issues that our Sleep Practitioners can help families with. It's a difficult behaviour ...
Read More Magical Christmas at Covent Garden
On 22nd December, we held our ‘Christmas at Covent Garden’ concert at St Paul's Church in London. Guests were treated ...
Read More Poppy’s Dream Comes True
Go Poppy! On 24th June Poppy’s dream finally came true – she completed the Cardiff triathlon in style! The weather ...
Read More Dr Eduard Gratacós – Why health starts before birth
Our research team at the University of Barcelona looks at identifying deviations in foetal brain development as early as possible ...
Read More Chris Oliver – My Journey into Research: the Boy at the Pillar
Professor Chris Oliver explains his journey into research as well as the pioneering work of the Cerebra Centre for Neurodevelopmental ...
Read More Mr Nigel Simpson: My Journey into Research
For most mothers pregnancy is a safe and straightforward process but for 1 in 5 unexpected complications can occur and ...
Read More Innovation Centre Create High tech horse riding helmet for young boy with unique head shape.
Tommy-Lee in action The Cerebra Innovation Centre (CIC), along with the help of BSI (British Standards Institution) have taken the challenge ...
Read More Professor Richard Hastings – My Journey Into Research
Professor Richard Hastings Professor Richard Hastings is Professor of Psychology and Education and Cerebra Chair of Family Research in CEDAR ...
Read More Survey finds local authorities failing to comply with their legal obligations to parent carers/young carers
A survey of over 40% of English social services authorities by the Cerebra Legal Entitlements Research Project at Cardiff Law ...
Read More Autism and Mental Illness: a Teenager’s Perspective
Mair Elliott Mair Elliot shares her experience of living with both a mental illness and Autism. "Since 14 years old ...
Read More Sexuality, Autism and Young People – Families Study
The Sexuality, Autism, and Young People- Families study (SAY-Families) is a joint project between Warwick, Bangor and Glasgow Universities. Researcher Stacey ...
Read More Cerebra Family Research Ambassador Project
At Cerebra we believe in listening to families and using what they tell us to inspire research, innovation and information. ...
Read More “CleverstiX” – a clever way to bring fun to the dinner table!
CleverstiX Dr Ross Head, from The Cerebra Innovation Centre (CIC) recently came across a novel little product at the OT ...
Read More CIC Test Their Surf Access Vehicle (SAV)
The CIC team recently tested their new surfing products at Poppit Sands in Pembrokeshire. The team has developed a Tandem ...
Read More Innovation Centre work on new surf products
Surf access vehicle: SAV One of the new products being pioneered by CIC this summer has been the new Surf ...
Read More GoTo Seat is a hit
Sales of the brilliant GoTo seat are raising money for Cerebra. We have kept you up to date with the ...
Read More Cerebra and Leckey’s GoTo Seat
Cerebra have teamed up with James Leckey Design to develop and design a new and exciting lightweight portable postural support ...
Read More Make a Donation
Please help support our vital work that enriches the lives of thousands of children and their families every day.
Count Me In Lottery
Taking part in our ‘Count Me In’ Lottery is a wonderful way to make a real difference to children with brain conditions and their families. It also means you are in with a chance to win our big weekly prize.