Resources – October 2015

ResourcesOur monthly roundup of useful resources for parents of children and young people with neurological conditions.

The Parent Zone
Information for parents about keeping children safe online, talking to children about mental health issues, the meaning of various teenage slang words, and other subjects, (The Parent Zone with the National Crime Agency).

Recently-founded company selling a range of educational / young play toys.

Same But Different
A Community Interest Company aiming to raise awareness of disability through arts.

A further insurance company that parents have found useful for covering travel with children who have pre-existing conditions.  Some others are already listed in our article on travel insurers covering children with disabilities.

Universal Credit and Other Benefits
Guide linking to information on extra support available to people who receive Universal Credit, including help with healthcare costs, free school meals, legal aid and court fees and disability and pregnancy grants and payments, (Dept for Work and Pensions).

Details of the changes to school- and college- age qualifications in England
These relate to a series of summary “postcards” that are being sent round schools (Ofqual).

Health and social care resources

Patient Engagement Hub
A showcase of resources explaining the range of services available from pharmacists / chemists’ shops, (Royal Pharmaceutical Society).

Video about Personal Health Budgets
A solicitor runs through the essentials in about 20 minutes, (Autism Connect).

Care Act 2014
An explanation of the Care Act 2014 which came into force in April this year, (Irwin Mitchell solicitors).

The routine immunisation schedule from Summer 2015,  and Vaccination of individuals with incomplete or uncertain immunisation status, from September 2015, (Public Health England).

NHS Rights in Health Care
A poster for under-18s about confidentiality, making their own decisions in healthcare and making complaints in their own right, (NHS England Youth Forum).

Making a complaint about health and social care services
Information to help you make a complaint in the UK and Channel Islands, (Headway).

Resources for specific conditions

New version of the Transition Toolkit for families of children with autism
Updated, plus new sections including independence skills, safety, digital literacy and other topics to help them move from adolescence to adulthood, (Autism Speaks).  Please note that while the general advice applies anywhere, the references to public service systems and legal matters only relate to the USA.

Cancer and school life
Resources to help teachers and others to support children with cancer, (CLIC Sargent). Also, check out our guide, Returning to School: A teachers guide for pupils with brain tumours, during and after treatment.

Acquired brain injury in children: a parents’ guide
Free 200-page practical guide covering all stages of a child’s journey through treatment, rehabilitation and transition to adulthood (Children’s Trust).

Dealing with a Brain Injury
Suggestions for understanding and dealing with a changed young person and changed family dynamics after an adolescent has had a brain injury, (Caron Gan, Bloorview Research Institute, Canada).

Concussion Consortium
A new website that includes advice about the type of traumatic brain injury that can occur in sports activities, (Kern County, USA).

Everyday triumphs: small steps to a healthier heart for mental health service users [aged 14 and over]
This resource is based on statistics indicating that people with severe mental health conditions are at a higher risk of developing heart disease (British Heart Foundation).

Epilepsy films and booklets
A collection designed for people with epilepsy and learning disabilities, (Nottinghamshire Healthcare).


First annual Challenge Poverty lecture
Glasgow, 22 October 2015
A lecture given by Naomi Eisenstadt, the Scottish Government’s new Independent Advisor on Poverty and Inequality, about what can be done in Scotland.  Free but must be booked in advance, (Poverty Alliance and Centre for Contemporary Arts).