Our monthly roundup of useful resources.
Muir Maxwell Trust
Practical support for families of children with severe epilepsy.
Epilepsy Sucks UK
A parent-led organisation that gives anti-suffocation pillows to suitable children with epilepsy.
Free Epilepsy Smartphone App
The Epilepsy Society offer a free app for Android and iPhone, with a seizure diary and first aid information. They have also updated their “Just diagnosed” pack, which can be ordered free from their website. This contains a seizure diary, first aid cards, a helpline card, a “What would help me?” postcard, and an ID card and wallet.
Fledglings Second-Hand Service
For families to buy and sell larger pieces of second-hand special needs children’s equipment,
Interactive map to find your local youth services, including counselling, advice and information, (Youth Access).
Heatwave plan for England
Updated advice on keeping children and other groups safe during hot weather, (Public Health England). High risk factors such as certain disabilities, inability to adapt, environmental factors and medications that increase sensitivity to ultraviolet are described more fully in a related document, “Making the case”.
Prescriptions and Holidays
Information about getting an extra supply of a prescription medicine to cover a holiday, (NHS Choices).
Early years resources to support children’s communication development, (Communication Trust).
Well at school
Advice and information for teachers of children with various conditions in order to help them manage these at school (Chelsea Community Hospital School). Also of interest to parents.
Free online courses from universities and cultural institutions.
Mental Health Behaviour Guidance
Government guidance relating to school pupils: how to differentiate between issues of bad behaviour and issues of mental health, (Dept for Education).
“Find your perfect tutor”
A searchable database of tutors in various different subjects. (Teachigo, privately-run database).
“How do I explain autism to a sibling?”
Article covering ways of making autism understandable to other children of different ages and developmental stages, (Autism Awareness Centre Inc.)
Building resilience in children
A series of short videos and information explaining the interaction between genetics, care, environment and brain development, (Harvard University, Center on the Developing Child).
“Information sharing matters”
Interactive video-based e-learning about effectively sharing information between families and a range of professionals including paediatricians, health visitors, GPs, therapists, child minders and pre-school and nursery teachers. (Royal College of Paediatrics and Child Health).
Free e-learning designed to challenge and positively change attitudes amongst the UK workforce / volunteers towards disabled children and young adults. There are 57 learning sessions and resources to go with them, (Royal College of Paediatrics and Child Health).
Short guide to making meetings accessible to people with learning difficulties / disabilities, (SCIE, Cecilia Mercier).
An expert’s view of modifications that could be made to a house to ensure full access and independent living for a person with serious injuries, (Irwin Mitchell).
Step-by-step guides to living with disabilities
Free e-book series, (Henshaws Society). Sample title: “Supporting your child to maintain skills for independent living”.
Respite for Carers
Information about carers’ breaks and respite care, (NHS Choices).
New factsheet on Carer’s Allowance, (Contact a Family).
New factsheet on Personal Budgets in England, (Contact a Family).
Mental Health Act (1983) Code of Practice factsheets
Designed particularly for those in hospital under the Act, and their carers, (NHS Choices).
Free online course about applying the new SEND legislation in England
Designed for educationalists but also informative for parents, (OnLine Training Ltd.)
Education Rights Series, principally applying to England
Four factsheets on young people over 16 with SEND; school transport; transfer reviews (to move from a Statement of SEN to an EHC Plan); and Education, Health and Care needs assessments, (Down’s Syndrome Association).
The Care Act: transition from childhood to adulthood
Resources, including policy documents and ways of supporting young people, (Social Care Institute for Excellence, SCIE).