We are very grateful to The Santander Community Fund, via the Community Foundation in Wales, and The Boshier-Hinton Foundation who have each awarded us a £5,000 grant to fund our Problem Solving Toolkit Workshops.
Their generous support means that we can help more parents and carers to access health, social care and education support services for their child, helping them to discover a better life together.
Our Problem Solving Toolkit and Workshops are designed to help families access the services that their children need, and are entitled to. The Toolkit is a comprehensive, practical and easy to use guide, packed with useful advice, solutions and precedent letters. You can download the Toolkit here.
Problem Solving Toolkit Workshops
This year we have launched our Problem Solving Toolkit Workshops which use the information and resources in the Toolkit to give parents, carers and professionals the skills and knowledge they need to advocate for themselves. Each workshop lasts for 3-4 hours and includes a presentation, case studies for group work and a chance to discuss and share experiences. The workshops are free.
We’ve had some great feedback from parents and professionals who attended our initial workshop:
- “A wonderful guide to help parents, thank you so much. It is a real maze and you have provided a crutch for parents to use”. (A parent)
- “I will be recommending this resource to the families that I work with. It is wonderful”. (A professional)
Thanks again to The Santander Community Fund, via the Community Foundation in Wales, and The Boshier-Hinton Foundation for their generous support.
Carmarthen based florist, FloralDecor by Sienna, has come up with a marvellous way to raise funds for Cerebra – she has created a beautiful Cerebra bouquet!
There are three different bouquets available, the Classic, Signature and Luxury Bouquets which are £30, £40 and £50 respectively.
10% from the sale of each of these bouquets comes directly to Cerebra and each is exquisitely gift wrapped and presented in a gift bag.
Please note that due to the seasonal availability of flowers it may be necessary to vary individual stems from those shown. The skilled florists may substitute flowers for one similar in style quality and value.
We think the bouquets look stunning but don’t take our word for it, take a look!
You can contact Sienna on 01267 220726 or email@example.com.
Les Quizerables accept their prize
On 28th February we held our first quiz evening at the Village Hotel in Cardiff.
Teams competed for the title of “Cardiff’s Smartest”, answering questions on topics from sport to food and drink. There was even a taste testing round where teams had to guess the branded product.
Cerebra Ambassador Sian Taylor attended the evening to share how Cerebra has helped her family since the birth of her son Ollie, who has the rare condition Wolf Hirschorn Syndrome.
In addition to the quiz, we also held a hugely successful raffle.
The winning team, who went by the name Les Quizerables even kindly donated their £300 prize back to Cerebra.
The event raised nearly £800 in total and everyone at Cerebra would like to say a massive thank you to everyone who made the event a success.
We are delighted that South Wales recruitment agency Centric have chosen us as their charity of the year for 2017!
Communications Executive for Centric, Grace Busby told us how delighted they are to be partners with us:
A brain condition has a life-long impact not just on the child, but their whole family and Cerebra do an amazing job of helping to support those families and create the best opportunities for them. Everyone at Centric Recruitment is passionate and committed to fundraising and we are thrilled to get behind such a fantastic cause as Cerebra. We look forward to working together in 2017!
Centric will be supporting us with lots of fundraising events throughout the year and their staff were delighted to recently meet with one of the families we help – Ryan, Dylan and Taran Hooper, along with their mum Vanessa
If your organisation would like to join us on our journey to help families with a child with a brain condition to discover a better life together, please get in touch with Sadie France on 01267 244216 or firstname.lastname@example.org.
Lyn Palfreyman and Betty Blyth with Box Co-ordinator Melanie Clark
Our collection boxes can be found on the counters of shops, cafes and businesses all over the country. It’s hard to believe but all that spare change really does add up.
On average our collection boxes raise an incredible £55,000 for us! Lynn Palfreyman and Betty Blyth run a small shop on a campsite in Burton Constable in Yorkshire. They have had one of our collection boxes since 2000 and to date have collected an amazing £27,469 in spare change.
To develop our collection box scheme we are building a team of volunteers across the UK who can build contacts with local businesses in their areas and find new homes to place our boxes.
If you have some time to spare and would like to find out more, please get in touch with our Box Co-Ordinator Melanie Clark on 01267 242587 or email@example.com.
Every penny we raise helps families with children with a brain condition to discover a better life together. It’s an incredibly rewarding journey for everyone involved – why not be a part of it?
Five members of Fetal i+D team at the University of Barcelona took on the challenge of running the Barcelona Half Marathon on Sunday February 12th.
The runners are all medical doctors and researchers from the team and work on a daily basis to diagnose and treat fetuses with neurodevelopmental risks. They all gladly offered to run as a way of getting more involved with their community and to support the families and children they usually see in their clinics, in a different way.
Rui V. Simões, PhD, one of the runners and a researcher in the group told us: “This was actually my first half marathon and the motivation could have not been better. I felt very proud to have run for Cerebra. We made it to the finish line and hope that the fundraising does too. Our children deserve it!”
Our thanks go to the whole team for joining us in our mission to help families with children with brain conditions discover a better life together.
You can keep up to date with all of our our website. If you would like to take part in an event that isn’t listed you can also contact Cecilia Bufton, Events Coordinator on firstname.lastname@example.org or 01267 242586.
On 22nd December, we held our ‘Christmas at Covent Garden’ concert at St Paul’s Church in London. Guests were treated to stunning performances from Hywel Girls’ Choir and Hywel Boy Singers and the Angelicus Chorale who comprised of Hannah Seward (soprano), Lauren Williams (soprano), John Hywel Williams (conductor), Huw Tregelles Williams (organ), Jane Jewell (piano), Gareth Hamlin (percussion), Jeremy Hywel (voice of Christmas).
We raised over £800 in donations on the night, with members of the iconic Chelsea Pensioners leading the way with their collection buckets!
It was a genuine delight to see how much everyone enjoyed the festive atmosphere, (as well as the mince pies and mulled wine) but the standing ovation that the choir received at the end of concert was the icing on the cake.
A massive Cerebra thank you to everyone who played a part in making the evening such a special event! We’ll be hoping to hold another event like this in 2017 so keep you posted! Here’s just a few of the photos:
We would like to say an extra special thank you to our sponsors, without who this event wouldn’t have been possible:
We recently celebrated our 15th birthday with a festive fancy dress dash in Carmarthen! We had lots of fun meeting local families and supporters who loved joining in with the Christmas fun.
There were three fancy dress races on the day starting with a Toddler Run for the little ones, a 100m Sprint for the more athletic and a Family Fun Run for everyone to get involved in. The costumes were great with some runners bedecked in tinsel, some festive superheroes and even a family of reindeer! The cast from the local panto also joined in the fun – with great rivalry between the Dame and King Rat!
The town’s Mayor, Cllr Wyn Thomas, presented prize hampers for 1st, 2nd and 3rd place in each race along with one for the best fancy dress. The hampers were made up of goodies donated by local shops and businesses.
Families could also visit Father Christmas and his elf in his grotto and enjoy mulled wine, hot chocolate and mince pies, kindly donated by the local Co-Op store.
Our Event’s Co-ordinator, Cecilia Bufton, said: “we wanted to make this a lovely festive fun event that the whole community could get involved in, while raising awareness and funds for the great work that we do and celebrating our 15th birthday”.
We’d like to thank all the local businesses for their sponsorship and support, the Town and County Councils for their assistance, the Town Mayor for giving his time and students from the University of Wales Trinity St David for their photography skills.
Thanks to everyone who joined in the fun and made this event such a great success – we’ll see you all again next year!
Thank you to everyone who took part in our first Head Awareness Week!
We know that families where a child has a brain condition face challenges every day. Just to learn, play, make friends, enjoy and experience the world can feel difficult, even impossible. But we don’t believe there’s any challenge that can’t be overcome.
So we listen to families, we learn from them, we work with them. We carry out research, we design and innovate, we make and share. From new equipment to new learning resources, to new ways to play and support each other, everything we discover together makes life better. It opens doors to discovering the world.
During our Head Awareness Week we invited everyone to get involved in our journey of discovery by wearing some sort of headwear, sharing the results on social media and making a donation.
The week was such a great success we’ll be doing it again next year so keep an eye out for details.
Go on – be head aware with us!
If you need some inspiration, here are some of the brilliant photos you shared during the week:
Alissa with her award
We are delighted to announce that Alissa Elsaesser has been recognised by the Carmarthen Journal for the great work she does volunteering and raising money for us.
23 year old Alissa Elsaesser from Felin Wynt near Cardigan was born with Down’s Syndrome, but she has never let anything hold her back and she is always eager to help those in need.
Alissa has just begun to live independently having moved into her own flat in Cardigan. She studied at Pembrokeshire College and enjoys many hobbies including singing, cooking and even skiing! As well as having a hectic social life, Alissa also volunteers at Carmarthen based charity Cerebra, who support children with brain conditions, like Down’s Syndrome.
For the past seven years Alissa has spent her holidays volunteering at Cerebra, helping with the administration of the charity’s two raffle draws that take place every year. She is a helpful, friendly face around the office and very much part of the team at Cerebra.
In 2015 Alissa went the extra mile by taking part in the London British 10k run to raise money for the charity. Running the race was a big challenge for Alissa but she trained hard for her challenge, motivated and encouraged by the messages of support from the local community and the donations that started pouring in. She also loved becoming a local celebrity, thoroughly enjoying all the attention from local media. Alissa raised over £2000 in personal donations with an incredible £50,000 raised by the charity through a telephone campaign.
Alissa at 10 Downing Street
Alissa has attended several prestigious charity events, including one at 10 Downing Street hosted by Samantha Cameron, where she helped to raise awareness of the charity and its work. Her bright, cheerful, positive outlook shines through and undoubtedly helps her achieve her aim of being able to help other children and young people with brain conditions.
Alissa was presented with her award at a glittering ceremony on 23rd September and thoroughly enjoyed her evening, dancing till the small hours. Everyone at Cerebra is incredibly proud of Alissa and would like to thank her for everything she does for us.