Category Archives: Fundraising

Christine Braves Wing Walk

We would like to say a massive well done and thank you to Christine Bunting who completed a wing walk to raise money for us on 4th August.

Christine is a member of our London Minds group and is no stranger to taking part in high adrenaline activities, having already completed a skydive back in 2015.

For this exciting new challenge, Christine took to the air on a 1940s Boeing Stearman biplane with the Breitling AeroSuperBatics Wing Walking team at Rendcomb Aerodrome in Gloucestershire.

Despite the rapidly growing list of activities she has ticked off her bucket list that have involved her to take to the skies, Christine actually has a fear of heights!

Christine said: “I wanted to do one last big fundraiser for Cerebra before I hit the ‘big 60’ which is rapidly approaching!

“I spent last winter wondering what I could do to top my sky dive because I wanted to do something that people would feel was really worthwhile to pay me to do.

“An idea began to brew and in a moment of, what I can only describe as complete and utter madness, I decided to sign up and perform a wing walk.

“Of course, now I’ve started telling people and raising money, I can’t quite back out and I have to go ahead with it!”

Christine has raised over £1,500 so far and you can visit her Virgin Money Giving page to help her reach her target.

Thanks for being Head Aware with us!

We’d like to say a huge thank you to everyone who joined in with our Head Awareness Week this year.

You really blew us away with all your commitment to wearing silly hats, wigs and whatever you could get your hands (or heads!) on!

A big thanks to Bolt Burdon Kemp, Centric Pontypool, Enable Law, The Hospital Saturday Fund, Irwin Mitchell Leeds, Novum Law, PenCru, Tomcat, Ruffer, Talking Mats and Wolferstans. They all fully embraced Head Awareness Week and got their staff to pose in an impressive array of head gear. You can see a selection of our favourite pictures below.

Thank you to everyone who took part and remember, if you would like to donate, you can still do so by texting HEAD20 and the amount you would like to give to 70070.

Alex Completes 60 Mile Trek

Alex and Ezra at Mwnt Beach

Alex and Ezra at Mwnt Beach

We would like to say a huge well done to Alex Elsaesser who recently walked through the night to complete a 60 mile trek along the Ceredigion Coastal path.

Alex said: “In the end it took us 29 hours walking to finish the 60 miles. Walking on the cliffs through the night was mental.  The group that organised the Walk pulled out a month before so we had to do it on our own. Fortunately we had beautiful weather and light winds. The scenery was beautiful but I would never suggest anyone do this all in one go. I never want to see another gate!”

Alex has completed many challenges for Cerebra previously including taking part in the London 10K for several years. He wanted to finish his run of fundraising with a bang and we think he has succeeded!

The 71 year old was joined on the walk by Jess Elsaesser and Ezra Mathias.

The group have so far raised an incredible £2,450 for Cerebra – far surpassing their initial £750 target. You can still support them through their Just Giving page.

Anne and Brian Make Fantastic Donation

Mrs Pearce hands her cheque over to Laura MacDonald

Mrs Pearce hands her cheque over to Laura MacDonald

The story of one little boy inspired Anne Pearce and her husband Brian to donate an incredible £5,000 to Cerebra!

Anne first heard about Cerebra from one of our Ambassadors, Nicola Tilson. Nicola has received support from our Sleep Practitioner Laura MacDonald for her son Alfie.

Nicola said: “Alfie had been diagnosed with a complicated medical condition. At that point, he had retired into his own world and we weren’t really sure how to bring him back.

When Laura came, it was a turning point for us. Since then, Alfie’s gone from strength to strength. It’s been progress after progress.”

Nicola has held several fundraising events for us, including several at Nationwide building society, where she works and that’s where Anne met Nicola and was touched by her family’s story.

Anne said: “I’ve been a customer for 20-odd years. I got to know Nicola and the fundraising they’ve done here. Nicola told me she wanted to fundraise for Cerebra for what they’ve done for her little boy.” When Nicola told Anne about her latest fundraising event, and she just simply had to be involved.

Nicola said: “Mrs Pearce, being Mrs Pearce, wanted to help. She came in to the bank a few days later with a cheque and we were absolutely blown away”.

Anne and Brian are both battling cancer themselves but still feel compelled to help in any way they can. As well as helping with donations, Anne has also knitted outfits which were used to clothe premature babies at St James’s Hospital in Leeds.

Thank you Anne and Brian!

Samuel and Angel Bake Some Sweet Treats to Raise Funds

Samuel, Angel and Jacky

Samuel, Angel and Jacky

On Saturday 1st July 2017, Samuel Turner and his friend Angel raised £50 for Cerebra at a fete at Treetops, a specialist school in Essex.

They made some delicious cakes to sell at the fete and even made a very special Cerebra cake which was of course Samuel’s favourite!

Cerebra Cake

Cerebra Cake

Samuel said: “In my heartfelt experience, it’s never a matter about what it means to anyone, this lovely Cerebra cake is not just to raise money for the charity, it’s about hope and capability to show that there are children around the UK that are suffering problems inside and I believe that we should help to find a solution because people might be unaware of the child’s problem.

I’m proud to make this special cake. I think some student and pupils would love the cake I made and me, my mum and my friend Angel have felt the love for being at Treetops School to help Cerebra. This does makes me, my family and my friend Angel feel so special for our great efforts since I started helping the charity at the start of 2017.”

For Samuel’s friend Angel Jolly, it was a life changing activity unlike anything she has ever experienced.

Fete table

Fete table

Angel said: “We all were excited to be at Treetops fate. Once we got there, we all worked hard as a team to decorate our table for the fete. At first, I thought we’re going to sell a lot of cakes. Sam and I wore the Cerebra shirt and Jacky, which is Samuel’s mum was wearing a Welsh t-shirt. Originally, the Cranberries cake went to the Bake-off competition but we didn’t win. In the end, we took part and we are all very happy.”

We’re very lucky to have fantastic fundraisers who are always willing to go the extra mile to raise funds and awareness for Cerebra.

If you would like to find out how you can support Cerebra by holding your own event like this, please contact our fundraising team on 01267 244222.

 

Join our team and be a Triathlon Superhero!

The Superhero Tri is the UK’s one and only disability sports series for the everyday Superhero and their family and friends.

The event will take place in Dorney Lake, Windsor on 19th August and promises to be a fun filled day with the chance to meet and take part alongside Paralympian and celebrity team captains.

We’re thrilled to be a charity partner for the event and we’re looking for people to join us on Team Cerebra. There are lots of different ways to take part, the only requirement is that one person on your team (or you if you choose to fly solo!) must have a disability:

  • Team up – unite with disabled and non-disabled friends and family to share the fun
  • Grab a sidekick – tow a teamate in the water and push or pull them around the course
  • Fly solo – for those who want to take on all the triathlon stages by themselves.

There are also three different distances that you can choose from:

  • Sprint – 150m swim, 3k cycle, 1k run
  • Half – 400m swim, 10k cycle, 2.5k run
  • Full – 750m swim, 20k cycle, 5k run

Father and daughter team, Rob and Poppy, have already signed up and have been chosen to take part in a special celebrity race. They’ll be partnered with Olympian Chris Jones and will be competing against the likes of Hannah Cockcroft and comedian and talk show host Adam Hills.

You can find out lots more about the event on the Superhero Series website, but if you’d like a chat about the different options and how we can help you to take part please just get in touch with ceciliab@cerebra.org.uk.

We’ve got people on hand to help out with the running, cycling or swimming legs and may also be able to supply some equipment – including a specially designed boat.

We’d love you to join us and show off your superpower. So please get in touch – it’s going to be awesome!

 

 

Poppy to Take on Second Triathlon Challenge

Rob and Poppy

Rob and Poppy

Last year, eleven year old Poppy Jones realised her dream of competing in the Cardiff Triathlon. This was particularly challenging for Poppy as she has chronic lung disease and quadriplegic Cerebral Palsy. This means she can’t sit, stand, roll or support herself and life is a daily challenge for her, but having a life-limiting condition doesn’t stop her having fun.

Poppy’s Dad Rob helped make her dream come true by pushing/pulling her around the course using custom made equipment specially designed by our Innovation Centre (CIC).

The father and daughter team will be once again rising to the challenge, taking part in the Swansea Triathlon on 28th May.

Rob’s motivation for doing this is simply to help his daughter: “taking part in this triathlon is so exciting for her and psychologically it will really benefit her. She gets so frustrated at the limits her condition puts on her and this will really focus her mind on what she can do. Poppy doesn’t think ‘I can’t’ but rather ‘with a little help I can’. I’ve got my work cut out though as Poppy doesn’t want to just take part – she wants to win!”

The team at team at the Innovation Centre, who designed the equipment that allowed Poppy to take part in the Triathlon last year,  took this opportunity to re-design some of the equipment to allow Poppy to compete on an even larger scale.

“Last year, we designed a chair and boat in Poppy’s favourite colour – yellow,” says Dr Ross Head from the CIC.

“For this year’s challenge, we’ve modified both products to make them more efficient; to make them faster – and to change the look to match Poppy’s new favourite colour, orange!

“Poppy’s also grown a lot since last year’s triathlon and the boat we built last year was too small. So I redesigned the boat to be bigger, however this meant it would be heavier, so I started from scratch using everything I had learnt about hydrodynamics to ensure the boat would be fast, efficient and create the minimum resistance so that Rob could swim the course. This year’s boat uses a V-shaped tri- hull. This allows speed through the water but is given stability by the two smaller outrigger hulls.

“Poppy’s Triathlon Chair has also been upgraded to make it faster and more comfortable. The guys at V-Trak very kindly donated some high quality wheels to help them roll to the finish line. It has upgraded bespoke components which will ensure efficiency, a speedy transition from cycling to running and ensure Poppy’s safety.“

The CIC team recently tested the boat out on the water (see below for photos).

You can sponsor Rob and Poppy through their Just Giving page.

 

 

Sleep Walking to Success

The walkers before they set of

The walkers before they set off

On Saturday 6th May we held our second walk to the top of Pen-y-Fan in the Brecon Beacons to raise vital funds for our Sleep Service.

Following a safety briefing from the fabulous mountain rescue team, our brave walkers grabbed a glow stick each and, with an overwhelming sense of camaraderie, made their way to the summit!

This year, we were also joined by the Côr CF1 choir who not only braved the walk to the top of Pen-y-Fan but then entertained everyone with a few songs at the top. They were in fine voice, even after the trek up the mountain!

So far, this year’s Sleep Walk has raised well over £3000 and this will help fund our Sleep Service which aims to help families with children with brain conditions get a good night’s sleep.

We would like to say a big thank you to everyone who took part in the walk and for joining us on our journey to help families discover a better life together.

Give a Golden Pound!

With the launch of the new pound coin, our ‘Golden Pound’ campaign is a great way to give your old pound coins a new home!

Your donation can help make a difference to children like Holly.

Donating your £1 couldn’t be easier:

  • Text GOLD34 £1 to 70070 to donate £1
  • Call 01267 244216
  • Donate online using one of the donate buttons below:

Give just one golden pound today and help a family with a child with a brain condition discover a better life together. Thank you.