Category Archives: CIC

Daniel Shows off Weighted Cap

Daniel and his weighted cap

Daniel and his weighted cap

Daniel O’Connor has received a weighted cap specially made by Cerebra’s own Innovation Centre.

Weighted items can be very useful for children with sensory issues and conditions such as Autism as they can help them to feel grounded. This can help to increase a child’s concentration span which has clear benefits in a school setting.

The problem that many parents encounter is that weighted items are not always readily available or are unsuitable for their child’s specific needs.

That’s where the Cerebra Innovation Centre (CIC) comes in! The team recently created a weighted hat for nine year-old Daniel O’Connor who was diagnosed with Asperger’s Syndrome in February 2014.

Daniel found it difficult to concentrate in class often becoming quite fidgety. He started using a weighted blanket which was given to him by one of his teaching assistants and would often put it on his head, saying that it “helped him concentrate”.

His mum Julie contacted Dr Ross Head at the CIC and explained the situation. It seemed that creating a weighted cap for Daniel was the best solution!

The team took one of Daniel’s own caps and stitched in a specially developed a rubber-like sheet material that is tough and flexible, yet dense enough for even the thinnest of layers to offer enough weight for the cap.

The cap has had a huge positive impact on Daniel’s life and he says that when he is wearing it, the hat helps him to concentrate, and he can think for longer.

Julie said: “I can’t thank Cerebra and Dr Ross Head enough, and as for Daniel, the cap looks a lot better on him than wearing a blanket on his head!”

Product Review: Safe and Sound Travel Pod

Safe and Sound Travel Pod

Safe and Sound Travel Pod

CIC bring you a review of the Creative Care Limited Safe and Sound Travel Pod, a portable safe sleeping area.

Over the years CIC have been asked many times for a solution to safe sleeping whilst travelling. Secure sleeping areas are readily available for permanent fixtures, and we have tried a few times to make something that would allow easy travel, perhaps sleeping over at Grandma’s house, going on holiday etc. But we have never succeeded in anything structurally sound enough that we would be happy to release. So when we came across the fantastic Creative Care Limited and their Safe and Sound Travel Pod we were over the moon that we can now direct people to the perfect solution to this problem!

Not only are Creative Care Limited a great, friendly and ethical company, they have an amazing product, beautifully made from quality materials and it is the best priced unit on the market. By designing and manufacturing in-house, and cutting out the middle men, Creative Care Limited are able to bring you this product for the best price possible.

travel-pod-car

It gets better: The Safe and Sound Travel Pod has also been designed by former aircraft engineer Tom, to be the smallest and most portable unit available! The unit weights 25kg in total and has been cleverly engineered to fold into 2 bags, both of which will fit width ways between the wheel arches of an average car – this was a vital criteria for Tom, as the unit is portable. Using an innovative camp bed arrangement they have also removed the bulky mattress which increases portability.

Some of the results of using the Creative Care Limited bed ranges are outstanding. Some children have been clinically proven to be able to reduce their sleep medication, and others have stopped using it completely and are getting their best night’s sleep in their lives – and so are their parents!!

The enclosures are shown to be so comfortable and comforting that kids are making the choice themselves to sleep inside to get some rest and get away from the bustle of family life for a bit of “me- time”.

A sale or return scheme is also available for those who would like a demonstration of the pods before purchase, with the only cost being for the postage.

Please feel free to visit: http://www.creativecareltd.co.uk/support/useful-contacts/ or call the Creative Care Limited team on 07585667248 or 07731793687 for more information and current pricing.

CIC reviews CAPR-Style clothes

bodyvestWe were recently made aware of a lovely company called CAPR-Style who make awesome fashionable clothes for kids and young adults.

Not only have their clothes been designed to fit appropriately, but they are really cool looking and functional too. Ross Lindsay very kindly sent us some trial outfits and the CIC team were really impressed with the build quality, the softness of the fabrics and how they had managed to get such functionality into such cool looking clothes.

Claudia Romero, the founder of CAPR-Style set up the company after finding it increasingly tough to find clothes for her own son. She says:

All our products are designed specifically for people with severe disabilities and also for wheelchair users and those with incontinence problems. The main users are those who have: limited range of motion and impaired dexterity, motor neuron disease, muscular dystrophy, spinal injury, cerebral palsy, multiple sclerosis, stroke, hemiplegia, rigidity, developmental disabilities, toileting/changing needs, G-tube feeding, catheters and colostomy bags and IV tubes. All the final adjustments to our products can be customize to personal needs (i.e. T-shirts with access to PEG tube or length of legs).”

As one small example from their extensive range, they supply the “Merrick Style Body Vest” with a super cool Little Monster Pattern. This is a one piece body vest with attached shorts which would be very versatile for playing or sleeping.

An opening at the crotch helps with dressing and helps secure any nappies or pads that are worn. To aid dressing the left shoulder or both shoulders of the body vest can be made to open and be secured with snap fasteners. The opening means the body vest can easily be placed over the head and then secured in place without having to thread arms into place. CAPR-Style even offer an additional service to include PEG-JEJ tube openings with covers.

Other clothing items offered are trousers with Velcro seams to aid dressing, long and short sleeve t-shirts and the range is constantly evolving. They cater for girls and boys from 3 years old into young adulthood. Excitingly they are planning to add skirts, jumpers and jacket to their range very soon. Keep in touch via CAPR-Style’s Facebook page for more information.

Based in Edinburgh, CAPR-Style are very proud that all of their clothing is produced in Scotland to a very high standard at very reasonable prices, with all their materials sourced from the UK.

For further information the contact details are: info@capr-style.com or 07804 512 186 and the website is: www.capr-style.com.

CIC News – June 2014

We catch up with the guys at the CIC and find out what they’ve been up to lately.

CIC have been busy designing and building products to help our young members and their families as usual! The requests for design challenges have been coming in steadily but there is always room for more! If there is anything we can help you with, please feel free to give us a call. Remember that we are here to help with anything product related, for example we could help source products, or if you have an idea for a solution that could help your child we should be able to design and make something…..and if you simply have a problem with no idea for a solution…those are the ones we love the best- give us a call or drop us a line and we will rise to the challenge!

Here are a few recent examples of products that we have been working on.

Weighted Capscic-cap
CIC helped with a couple of recent requests for weighted caps to help with Tourettes and Autism. The families kindly supplied hats that had been tried for size and were the correct style and brand (very important consideration for our young members!) and CIC used their carefully developed method of making very slim flexible weighted pads to fit into the hats. From the outside you would never know there is any difference in the hat, but the resultant behavioural changes appear to be fantastic!

“Hi Ross, just to let you know Jamie’s hats arrived yesterday. He is so happy with them. He wore his blue one in class today and he said it helps him concentrate. He is feeling a lot happier in himself. Thank you so much for taking the time to make them. Jamie will be sending you a card this week, thanks again D”

An extra tall baby-gate
This request was for a stylish gate that would enable Mum, Sinead, to know that her son is safe and well inside his room and so removing the risk of him getting to the stairs, whilst still being able to see each other through and decorated with Ben 10 images. As usual, the gate had to fit the style of the house and not have a negative impact on the environment or look too restrictive. We decided on a simple form with a curved top to break up the shape and then found some lovely images of Harvey’s favourite TV character.

“Hello I received the gate and it is wonderful I cannot thank you enough also Harvey loves it with the ben10 stickers thank you very much for your time and effort. I have made a donation to cerebra thank you again x S”

CIC writing clopeThe CIC Writing Slope
Something that we have been working very hard on recently is the design of our new writing slope. You may remember that we told you about one that we had made for a young lady last year, and from the response to that story we have now made another 30 units! The writing slope is made so that it can help children with writing and reading by helping to hold the paper and books steady and in a useful position. It has many innovative features such as: Adjustable angle controlled with a gas spring, a pen holder which negates the use of pen lids, magnetic reading and writing ledges and a carry handle.

Here is some of the feedback we have had so far:cic-writing-slope

“Thank you so much for Jack’s writing table, it is brilliant. I will get a donation sent to you and also a photo!”

“I am so very grateful for the beautifully crafted writing slope that arrived for Sim this morning! He is going to be incredibly excited when he gets home from school! Sim is 5 and a half and has Down’s Syndrome. He finds it very difficult to read books or try and draw/write when paper is placed directly on the table and we have been searching for a slope that enables him to do this, but have never managed to find one that hasn’t got a big lip, sits too close to the table, etc. The one you have made is absolutely fantastic and will be PERFECT! I love the attention to detail! The carry handle, the magnetic strips, the plastic tabs to keep books open, the pen slots, etc. Please do thank the team for all the hard work that has gone in to producing this for him. We really are immensely grateful.”

If this is of interest to you, please give us a call on 01792 483688 to discuss your requirements!

Tom’s Playring

Tom and his playring

Tom and his playring

Tom’s mum sent us a great picture of the Playring thanks to Cerebra.

The charity provided a Playring for Tom from the toy library, as well as helping them with a GoToSeat.

As you can see in their pictures, Tom loves both. He has developmental delay, but the Playring and GoToSeat help him sit up and take part in his physio to aid his development.

It also means he can join the family and enjoy shopping trips.

“He loves being in the trolley,” his mum Laura told us. “We’re so grateful to the charity.”

The GoToSeat was developed by Leckey and our Cerebra Innovation Centre. Take a look around our website to learn more.

Don’t forget that Cerebra receives no government funding – all of this is thanks to your support!

Sophie’s Bouncer

Sophie in her bouncerThe Cerebra Innovation Centre (CIC) have recently made a bouncer for a young lady called Sophie.

The bouncer allows Sophie to stand unaided and to bounce and play without her mum, Mimi, holding her. Mimi wrote these kind words:

“Thank you for your work! I was very glad to receive the bouncer. I set it up following the instructions and it works very well. I haven’t seen my daughter’s smile for long time. This is a relief for our stressed life!”

We have one spare bouncer, if you think it would be useful for your child, please drop us a line for more details at cic@cererba.org.uk.

GoTo Seat is a hit

Cerebra bear and the Goto seatSales of the brilliant GoTo seat are raising money for Cerebra.

We have kept you up to date with the development of one of our Innovation Centre’s design exploits – the joint venture between Leckey and ourselves to develop the Goto Seat.

Because the original design idea was ours we have a contract with Leckey called a Licensing Agreement. This means that every time they sell a Goto Seat they pay Cerebra a royalty fee to support the work we do and enable us to help more children and to develop even more innovative products.

The first quarterly sales figures are in and Cerebra have received £1192 in royalties! We are delighted and would like to thank everyone at Leckey for all their hard work developing our idea into such a successful product.

Sales of the the GoTo seat have continued to grow with the launch of the new size 2 seat which is suitable for children between 2 and 5 years of age. It offers an adjustable headrest, extended leg supports and a stronger backrest making it supportive enough for mild to moderate postural needs.

Cerebra Ambassador Chris Bennett and his son Elliott have been using the GoTo seat at dinner time instead of a high chair and told us “It’s brilliant – it makes dinner time more of a family thing as he’s closer to us and can eat from the table”.

We look forward to designing more products to add to the list and will keep you informed of all of our future developments!

Contact us

We’re here to help! If you think we can help with a design challenge or if you need advice on a product for your child, please fill in the form below and get in touch with Ross, Dan, Gerallt and Maria to discuss your requirements!


Please give us details about the child you care for or support

If the CIC team are able to help you with the design and construction of a prototype product we would like to make you aware that the product will be on long term loan to you, but ultimately remains the property of Cerebra and we would be happy to help you return or dispose of the product when it is no longer of use to you. We must also note that any and all resultant intellectual property relating to the product designed will belong to Cerebra unless specific terms have been discussed and agreed in writing prior to commencement of work.

Cerebra is committed to protecting and respecting your privacy. We will use the information you have provided to process your request for equipment.

We will store your details electronically and keep it secure. We will not sell or share it with third parties. We will keep your personal data for no longer than is necessary for the purposes described above.

Please tick the box below to give us permission to use your personal information in this way. You can withdraw your permission at any time by contacting contactcare@cerebra.org.uk. For more information about your rights under data protection legislation, including your right to make a complaint to the Information Commissioner’s Office, please visit ico.org.uk/for-the-public

If you have any queries about how we handle your personal information, please contact us at contactcare@cerebra.org.uk

Cerebra’s Oxi-Gem

Plans for the oxy-gemCerebra’s Innovation Centre has started 2014 with great plans and lots of new projects in the making.

Thanks to all of your great requests, we have lots of design work to do and have got stuck in already! This is the design for the new oxygen trolley for young children, the CIC Oxi-Gem.

We have designed it to include a fold-out handle, a seat for taking a rest and front wheel steering with lovely free running bearings to make easy work of pulling a 4kg oxygen cylinder. Don’t hesitate to contact us if you would like to register interest in this great product.

This is just one of many products being adapted and designed by the Innovation Centre, funded entirely by donations. If you need anything from us please don’t hesitate to get in touch – head over to the CIC page on our website for more!

Product review – Lumie bodyclock

Lumie body clockWith the nights drawing in early and the mornings remaining dark later CIC came across the Lumie Bodyclock Active.

The Lumie Bodyclock is a dawn and dusk-simulating alarm clock that we thought might help with regulating sleep and reducing tiredness, and might even help with falling asleep in the evening.

Straight out of the box the Lumie Bodyclock Active is clearly fantastic quality and very robustly built. Upon closer inspection and setup you see the thought that has gone into the design and operation. Setup is really simple for the default system and settings, and only takes a few minutes to get to grips with fine tuning the alarm to light up your room more gradually and choose between different alarm noises including radio, birdsong and a rooster!

Additionally the light can be set to simulate a sunset which gives you a lovely calming effect winding down slowly at the end of the day. We found that waking up after or during the “sunrise” reduced the grogginess of waking up in the dark and really did help a more vibrant start to the day. This product is a class 1 medical device so Lumie have really done their research and provide a top quality product.

Here is what Lumie have to say:

“Active is an alarm clock that wakes you naturally, with a sunrise that gradually brightens; choose the time that suits you. The light is a signal for your body to ease production of sleep hormones (e.g. melatonin) and increase levels of those that help you get up and go (e.g. cortisol).

Using a dawn simulator helps keep your sleep/wake cycle on track and has been shown to boost mood, energy and productivity levels for the whole day. If you’re not a ‘morning person’ Lumie Bodyclock Active is simply a much nicer way to wake up. It’s also an effective winter blues option and a useful complement to a lightbox in treating more severe SAD.”

For more information visit www.lumie.co.uk.