Author Archives: Elaine Collins

Cycling Success for Cerebra

Cycling team with Cerebra staff

Cycling team with Cerebra staff

A huge well done and thank you to the team of cyclists from Carmarthen AFC.

Everyone at Cerebra would like to say thank you to the team of cyclists from Carmarthen AFC for raising over £5000 for the charity!

The team – Anthony Parnell, Ashley Williams, Ceri Rees, Emlyn Shciavone, Moira Gorman and Paul Evans – rode all the way from Holyhead to the finish in Cardiff Bay from Thursday the 26th of June to Sunday the 29th.

Meeting them at the finish line were Cerebra’s CEO Chris Jones, Head of PR & Fundraising Sian Morgan, Head of Parent Support Kelly Gadd and ambassador Sian Taylor with her son Ollie who has Wolf Hirschhorn Syndrome and epilepsy.

Ashley Williams and Alfie

Ashley Williams and Alfie

 

The team’s cycle ride is a great example of the kind of thing you can do to raise money for Cerebra. Take a look at our fundraising pages for more ideas.

Thank you again to Carmarthen AFC!

Three Peaks 2014

The team reach the top of one of the peaks

A photo at the top!

A team from the DVLA in Swansea will be taking on the Three Peaks Challenge to raise money for Cerebra.

Jason Thrupp, Noel Husband, Stephen Hartnoll, Matthew Bromham and Andrew Jones will be tackling the UK’s highest mountains – Snowdon, Scafell Pike and Ben Nevis.

Their challenge starts on Friday 4th of July at 5pm when they set off from Swansea, ending Saturday 5th of July at 5pm. They’ll be joined by their driving support team of Ian Irvine and Peter Truscott-Stroud.

The DVLA boys have already completed the Welsh Three Peaks Challenge last year, scaling Snowdon, Cadair Idris and Pen Y Fan.

The team have a real challenge on their hands, with Snowdon measuring 1085m, Scafell Pike 978m and Ben Nevis reaching 1344m – all to be completed in 24 hours.

Everyone at Cerebra wishes the DVLA team good luck.

Poole High School has the X Factor

Chris Bennett handing Gareth Owens a cheque

Chris Bennett handing Gareth Owens a cheque

Poole High School have donated an incredible £600 to children’s charity Cerebra.

To raise the money the school held a duet competition at school where 16 teachers were paired with 16 students to battle it out in an X-Factor style competition.

A range of songs from Katy Perry, McFly and Frank Sinatra were sung to varying degrees of success from staff. The staff also made a music video for pupils to watch for ‘What Does the Fox Say’ and students could buy badges to support their favourite teacher in the run up to the event.

The school decided to support Cerebra through contact with local Cerebra Ambassador Chris Bennett. Chris and his wife Hannah are proud parents to Elliott who was born 8 weeks prematurely and diagnosed with Cerebral Palsy at 8 months old.

He is now 2 years old and a very happy, chatty little boy who can’t stop smiling! The family don’t know how much cerebral palsy will effect Elliott’s life and initially found it very hard to come to terms with Elliott’s diagnosis. Cerebra have supported the family as Elliott works so hard to make his own special journey in life.

Everyone at Cerebra is extremely grateful to the staff and students at Poole High School. The money they raised will help the charity to continue making a positive difference to the lives of thousands of children and their families.

Angelina Parker, a teacher at Poole High School, along with some of the pupils who took part in the duet competition  presented a cheque to Cerebra Ambassador Chris Bennett and the charity’s Regional Fundraiser Gareth Owens on Friday 20th June at the school.

New on-line Fragile X course for professionals

cornerstoneA new e-learning course aimed at raising awareness of the little-known condition Fragile X Syndrome among professionals has been launched within the UK.

The online tool has been developed by the Fragile X Society in conjunction with social care charity Cornerstone and is designed to help professionals to better support individuals and families affected by the condition.  The e-course was developed following the appointment just over a year ago of a Scottish Family Support Worker,Scotland’s first dedicated support worker for families affected by Fragile X Syndrome.

The appointment, based in Cornerstone’s Glasgow office, was made possible when the Scottish Government announced the award of £25,000 – more than £100,000 has now been allocated to the initiative.

Michael Matheson, Minister for Public Health, announced the funding as part of the Scottish Strategy for Autism: Autism Development Fund for 2012-13.

Fragile X Syndrome is the most common cause of inherited learning disability.  It can cause a wide range of learning, social, emotional and behavioural difficulties alongside problems with language and maintenance of attention.   Despite being the most common cause of inherited learning disability, Fragile X  is actually a rare condition and is not widely recognised, with just one in 4,000 males affected and one in 6,000 females affected.

The design of this new course has taken several months, and has been done very much in conjunction with Cornerstone’s Learning and Development team.

The aim is that it will become an invaluable tool for professionals working with people with learning difficulties, and it has three main objectives – to provide information about Fragile X Syndrome to the relevant professionals, to give them the ability to recognise its characteristics and to help identify ways to support individuals with the syndrome.

For further information or to purchase the course please contact Sandra Thoms, Family Support Worker, Scotland on 07825050072 or email at sandra@fragilex.org.uk