With your support we can continue to make a difference to Jemima’s life and the lives of thousands of other children like her.
“Our beautiful six year old little girl is called Jemima. Jemima has a rare genetic neuro-abnormality called Angelman’s Syndrome.
Jemima has the biggest, brightest smile and the most wonderful infectious laugh. Due to her syndrome she has difficulty walking and is unable to speak. Although she understands lots of what’s happening around her she struggles to let us know what she wants and needs – which she finds incredibly frustrating. Jemima also suffers from epilepsy, is hyperactive, fed through a tube in her tummy, sleeps very poorly and often needs two people to care for her and keep her safe.
All this care means that she has very little independence, but thanks to Cerebra we have been able to buy Jemima a special trike. Although we help with the braking and steering, Jemima is able to peddle and steer herself – what joy! Without the grant from Cerebra Jemima would not be able to access this bit of ‘normality.’
Jemima has also taken part in one of the research studies funded by Cerebra. This has helped us to help her to communicate her needs, reducing her frustration and improving family life for all of us.
Thank you Cerebra for your help and continued support over the years – you have made a huge difference to Jemima’s and our lives.”
Amy and Stuart Francis (Jemima's parents).