New books in our library

We’ve got lots of great new books on a range of topics available to borrow now from our library.

Autism including Asperger Syndrome

AV6731 – Autism and Me (book & dvd)
Rory Hoy

L6732 – A Parents’ ABC of the Autism Spectrum
By Stephen Heydt

L6728 – Toby and Sox: the heartwarming tale of a little boy with autism and a dog in a million
By Vikky Turner


L6729 – Language for Thinking
By Stephen Parsons

Education Teaching and Learning

L6733 – Provison Mapping and the SEND Code of Practice: making it work in primary secondary and special schools
By Anne Massey

Growing Up

L6734 – When Young People With Intellectual Disabilities and Autism Hit Puberty: a parents’ Q&A guide to health sexuality and relationships
By Freddy Jackson

Law and Rights

L6735 – Special Needs and Legal Entitlement: the essential guide to getting out of the maze
By Melinda Nettleton

Personal Care including Feeding, Diet and Toilet Training

L6736 – What To Do About Smearing: a practical guide for parents and caregivers of people with autism developmental and intellectual disabilities
By Kate E Reynolds


L6730 – Sleep? What’s That? The incidence and impact of sleep problems in families of disabled children
By Gillian Cowdell

Special Needs in General

L6737 – Achieving Successful Transitions for Young People with Disabilities: a practical guide
By Jill Hughes

Therapies and Treatments including Medication

L6738 – Music Therapy for Multisensory and Body Awareness in Children and Adults with Severe to Profound Multiple Disabilities
By Roberta S Adler

Children’s Books

Autism and Aspergers

C0273 – Through the Eyes of Me
Age 5 and under

C0275 – Creating Autism Champions: autism awareness training for Key Stage 1 and 2
Age 8 – 12


C0276 – It’s Raining and I’m Okay: a calming story to help children relax when they go out and about
Age 5 and under

If you’d like to borrow any of these books, completely free of charge, contact our librarian on To find out more about the library check out our library page.

We Become Charity Partner of The Conquest



We’re very excited to announce that we’ve become charity partners of the Conquest.

The Conquest is a brand new seriously bouncy inflatable obstacle course where you can run, jump and bounce your way around their six massive inflatables.

We’ve tried out the course for ourselves and it’s a lot of fun!

The Conquest have a number of events lined up around the country for 2018 but the first event is taking place on 10th December at Carmarthen Showground. It will be getting eager Conquerors into the festive spirit by asking them to come dressed as Santa – there’s even a prize for the best dressed Santa!

As the charity partner of the Conquest, proceeds will be coming to Cerebra – something we’re extremely excited about!

You can sign up to take part in the Conquest’s December event through their website. See you there!

Dustin to Run London Marathon for Cerebra and his Buddy


Dustin is running the London Marathon in April

We’re very excited to welcome Dustin Erhardt on to team Cerebra for the London Marathon 2018!

Dustin’s story of how he came to decide to run for Cerebra is a unique and inspiring one.

Dustin lives in North Dakota in the USA and first took up running when he joined a group called I Run 4 – who match runners with buddies who may not be able to run themselves because of physical or developmental reasons.

He was paired with a little boy from the UK called Samuel who has Autism and he has been the inspiration for him taking part in a number of marathons and in April, Dustin is planning on making the journey across the Atlantic to meet his buddy and run the prestigious London Marathon!

Dustin's buddy Samuel

Dustin’s buddy Samuel

Dustin told us: “For the past two years I have had the honour of being matched with an amazing little boy named Samuel. In this time he has become like a nephew to me and we have exchanged pictures, videos, medals, encouragement and so much more. In May this past year I ran my first marathon with him with me every step.  In training every mile that got tough I knew he was right there with me encouraging me to keep going.  And now in April 2018 I have been given the amazing opportunity to travel to London and meet Samuel and run the London Marathon with him there cheering me on in person thanks to Cerebra as they have granted me a charity entry into the heavily sought-after London Marathon.  Together we can bring awareness and support for all of those that live with Autism.

My buddy Samuel’s little sister Phoebe is also a member of the IRun4 group and she has a a genetic condition called xp11.4 duplication. She has a small hippocampus on the left side of the brain that is damaged and which they believe is causing her epilepsy. She suffers from this along with autism, delayed speech and a hearing condition called hyperacusis. So for me, supporting a charity like Cerebra is not only important for all children it is very near and dear to my “Family” (we have completely adopted each other as family). I run because I can. When I get tired, I remember those who can’t run , what they’d give to have this simple gift I take for granted, and I run harder for them.  I know they would do the same for me.”

Dustin is fundraising through his Virgin Money Giving Page and has already raised nearly £1,000! You can donate through this and help him reach his £2,000 target.

The London Marathon is taking place on 22nd April.


Our LEaP project helps Rhiannon get the continence supplies she needs



Our LEaP Project helps Rhiannon get the continence supplies she needs and our template letter could help you to write to your local health board.

Our Legal Entitlements and Problem-Solving (LEaP) Project supports families who are struggling to get access to health or social care services. Louise contacted us for help with getting continence products for her daughter, Rhiannon, who’s 9 years old and has Wolf-Hirschorn syndrome. Louise and Rhiannon live in North Wales.

The local continence service had told Louise that it couldn’t supply more than 4 continence products per 24 hours, even though Rhiannon needed more because of her condition. Louise was also concerned about the quality of the nappies, as the adhesive fasteners seemed to be aggravating Rhiannon’s skin and would often break off. We told Louise about some guidance published by the Welsh Government , which describes the level of service that patients can expect to receive. This guidance says that the ‘4 a day’ maximum is just a general rule and that the actual number of products supplied will depend on a child’s individual needs. The guidance also says that families can ask for a re-assessment if their needs change. Louise took our advice and asked for a reassessment.

During our research into Louise’s problem, we noticed that another part of the guidance said that there was a strict limit of 4 pads per day and that families who needed more would be told to buy their own. We wrote to the Welsh Government’s Cabinet Secretary for Health to explain Louise’s situation and highlight the contradiction between the different parts of the guidance.

In response to our letter, the Welsh Government asked the local health board to address Louise’s concerns. It also agreed to update the guidance to make it clear that the number of nappies supplied should always meet a child’s assessed needs – in the meantime, it agreed to contact every health board in Wales to explain the guidance, so that other families weren’t told that they could only have 4 products a day.

The health board’s head of nursing contacted Louise and we’re pleased to report that Rhiannon is now getting the nappies that she needs. The local continence team has told Louise that it will review Rhiannon’s needs on a regular basis.

Do you live in Wales? Has your local continence team said that you can’t have more than 4 continence products a day, even if your child needs more? If so, use our template letter below to write to your local health board.

If you live in England and you’ve had similar problems to Louise, contact us at


Template letter to ask the local health board for more continence products to meet a disabled child’s needs.(this letter applies to Wales only):

Please change or delete the green text as appropriate.

Dear Sirs

Continence products for my [son/daughter][name]

My [son/daughter] [name] is [age] and s/he has [disability/condition].

I was recently told by [name of person] that [child’s name] is only entitled to a maximum of 4 continence products per 24 hours. However, [child’s name] needs more products than this because [explain why your child needs more because of their condition].

I recently read an article in Cerebra’s newsletter, which explained that the Welsh Government has published guidance called the “All Wales Children and Young People’s Continence Guidance and Care Pathway”. This guidance says that:

“the number of disposable products supplied per 24 hours will depend on the individual child or young person’s needs, but would normally not exceed 4 products per day without prior consultation with the Continence Service”

This means that whilst the health board can have a ‘general rule’ of 4 products per 24 hours, it should always supply enough products to meet a child’s assessed needs. I understand that the Welsh Government’s Chief Nursing Officer, Professor Jean White, is arranging a review of this guidance to make this meaning clear to all health boards.

As such, I am writing to ask the health board to:
– assess [child’s name]’s needs within [give a timescale you feel is reasonable], and
– provide a sufficient number of products to meet his/her assessed needs.

Yours faithfully

Your name