Resources – July 2014

Dictionery definition of 'resource'
Our monthly round up of useful resources.

PAWS dogs for the disabled
Workshops around the country, open to parents of children with a clinical diagnosis of autism aged between 3 and 16 years, either with a dog or thinking of having a dog.

Creating your own video clip
Trendsetters guide to creating your own video clips for the Internet. This is a follow-up to a workshop with a group of young disabled people (Scope).

A gesture of hope
Article about the use of gesture-based technologies (using computers etc.) for children with severe movement difficulties (SEN Magazine).

Children and Young People with Complex Health Needs
A booklet for families covering home life, relationships, fun, rights, future planning and useful links, (Foundation for People with Learning Disabilities).

Looking for an Ordinary Life
A related briefing “Looking for an Ordinary Life” reports on what families have found helpful, particularly where there is a child dependent on medical technology. The Foundation for People with Learning Disabilities also have a number of other publications available.

Strawberry Jam Books
Free e-books and games for children aged 4-12, (Strawberry Jam Books / Hilary Hawkes).

The CNS Store
Online store of brain injury-related products, (Centre for Neuro Skills, USA.  The same organisation also has a specialist bookstore).

Camp Experts UK
Advisory service promoting summer camps and programmes for young people with special needs, mostly abroad, some in the UK.

Public services information relating to children and disability:

The Children and Families Act and The Care Act
Factsheet about the effects of the recent Children and Families Act and Care Act on the transition to adult services in England, (Preparing for Adulthood).

Destinations of key stage 4 and key stage 5 pupils: 2011 to 2012
Destinations data:  where pupils have gone on to after leaving school or college. Designed to help parents in their choice of school.

Human Rights: Human Lives
A guide for public services on implementing the Human Rights Act.

Implementing the 0-25 Special Needs System (England)
Updated guidance for local authorities putting the systems in place for September 2014,

Resources aimed at early years workers (England), showing what can be expected in nursery and pre-school provision as a result of the new system.

Supporting pupils at school with medical conditions
Proposed statutory guidance for supporting pupils at school with medical conditions (England) from September 2014.

Mental health and behaviour in schools
Guidance to assist schools to identify and support pupils with mental health needs, (Dept for Education).

Special Educational Needs and Disability (SEND) Code of Practice
The new Special Educational Needs and Disability (SEND) Code of Practice for England, to replace the existing SEN Code of Practice for education, has been published.  The new one also includes health and youth offending organisations, and extends to the age of 25. Announcement by the Minister, Edward Timpson on 11 June. The Code can be found here and it comes into force on 1 September 2014, although initially some arrangements will be “transitional” from the existing system.

Carmarthen Slimmer’s 10k Challenge

Sarah Jones preparing for 10k race

Sarah Jones preparing for 10k race

A Cerebra slimmer has dropped nearly six stone and is getting ready to embark on a gruelling 10K run in aid of children with neurological conditions.

Sarah Marie Jones started her slimming journey last year and in little over 12 months has lost five stone eleven pounds. Encouraged by work colleagues as well as friends in the slimming group she attends, Sarah gradually began to shed the pounds and see the health benefits that come with losing weight.

“At my start weight, I struggled to do the simplest things,” Sarah explained, “I even struggled to get off the sofa and I knew then that I had to do something about it.” As she started to approach a healthier weight, she started to go to the gym to tone and improve her fitness levels and was offered the opportunity of running the British London 10K on July 13th. “At first I was concerned that I wouldn’t be able to run but I wanted to give myself a bit of a challenge to prove how far I’ve come,” she continued.

As well running to challenge herself, Sarah is also using the opportunity to raise funds for Cerebra. She is hoping to raise £500 to help improve the lives of families affected by neurological conditions.

You can follow Sarah’s progress and her own frank account of her training through her .

If you would like to donate, you can visit her Just Giving site at .

The Coral Garden Auction

Luke Mosley with coral from his shop

Luke Mosley with coral from his shop

Business owner Luke Mosley from Dorset has come up with an unusual way of raising money for Cerebra – by holding a coral auction.

Luke runs The Coral Garden in Poole, Dorset. The business aims to promote sustainable reef-keeping by providing an alternative source for corals and marine invertebrates farmed in the UK.

Luke decided he wanted to do something a little bit different to fundraise for charity after he found out about Cerebra, so he thought he’d auction some of his corals through his facebook page. You can find out more about the coral auction here.

The auction is attracting some interest with one bidder commenting “Cerebra is an excellent charity to support, they help kids with cerebral palsy such as my son.”

All of our services are funded by the public, so this auction, among many other events and activities, is vital to help us keep up our work.

If you have your own idea for fundraising visit our fundraising page today and help us make a positive difference.

Cycling Success for Cerebra

Cycling team with Cerebra staff

Cycling team with Cerebra staff

A huge well done and thank you to the team of cyclists from Carmarthen AFC.

Everyone at Cerebra would like to say thank you to the team of cyclists from Carmarthen AFC for raising over £5000 for the charity!

The team – Anthony Parnell, Ashley Williams, Ceri Rees, Emlyn Shciavone, Moira Gorman and Paul Evans – rode all the way from Holyhead to the finish in Cardiff Bay from Thursday the 26th of June to Sunday the 29th.

Meeting them at the finish line were Cerebra’s CEO Chris Jones, Head of PR & Fundraising Sian Morgan, Head of Parent Support Kelly Gadd and ambassador Sian Taylor with her son Ollie who has Wolf Hirschhorn Syndrome and epilepsy.

Ashley Williams and Alfie

Ashley Williams and Alfie


The team’s cycle ride is a great example of the kind of thing you can do to raise money for Cerebra. Take a look at our fundraising pages for more ideas.

Thank you again to Carmarthen AFC!

Three Peaks 2014

The team reach the top of one of the peaks

A photo at the top!

A team from the DVLA in Swansea will be taking on the Three Peaks Challenge to raise money for Cerebra.

Jason Thrupp, Noel Husband, Stephen Hartnoll, Matthew Bromham and Andrew Jones will be tackling the UK’s highest mountains – Snowdon, Scafell Pike and Ben Nevis.

Their challenge starts on Friday 4th of July at 5pm when they set off from Swansea, ending Saturday 5th of July at 5pm. They’ll be joined by their driving support team of Ian Irvine and Peter Truscott-Stroud.

The DVLA boys have already completed the Welsh Three Peaks Challenge last year, scaling Snowdon, Cadair Idris and Pen Y Fan.

The team have a real challenge on their hands, with Snowdon measuring 1085m, Scafell Pike 978m and Ben Nevis reaching 1344m – all to be completed in 24 hours.

Everyone at Cerebra wishes the DVLA team good luck.